Hi Maria, We are still around so you don't have to worry.
Today is my New Year and I prayed for everyone to have a happy and healthy New Year. May any afflictions that anyone has become healed, and by the grace of GOD that will happen. I know in my heart that there is a cure coming for CML. 18,s Marty On Sat, Oct 4, 2014 at 2:02 PM, Maria Cashion <[email protected]> wrote: > Hi everyone!!!! > I hope that all is well with everyone of you!!!!! Haven't noticed any > activity in a while and that worries me!!!! > > Maria > > On Sun, Sep 28, 2014 at 6:18 AM, <[email protected]> wrote: > >> [email protected] >> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics> >> Google >> Groups >> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> >> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> >> Topic digest >> View all topics >> <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!forum/cmlhope/topics> >> >> - jeanies blood results and Marty >> <#148dc53640c4fa63_148bbcef7677c233_group_thread_0> - 1 Update >> >> jeanies blood results and Marty >> <http://groups.google.com/group/cmlhope/t/9c8e85c9ec5718c8?utm_source=digest&utm_medium=email> >> Susan Zimmerman <[email protected]>: Sep 27 11:38PM -0400 >> >> This is so helpful, if I can figure it out, lol.... >> >> >> Always wondered what ANC was...... >> >> >> Susan >> >> >> >> >> -----Original Message----- >> From: 'Skip Duffie' via CMLHope <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Sat, Sep 27, 2014 4:44 pm >> Subject: Re: [CMLHope] jeanies blood results and Marty >> >> >> >> >> >> >> >> >> http://www.mdcalc.com/absolute-neutrophil-count-anc/ >> Hi Jeanie and all. Just reading your report, as it seem different to our >> reports here in NS... I will try to explain ANC as best as I can. First if >> you look to the right of my actual counts, you will see what the count >> should be. next you will not find ANC, this count is a combination of white >> cells and neutrophils, These counts do not appear on the copy of your >> results. To find this count (ask your nurse or lab tech) see mine from this >> Fri. >> the formula is ANC = through the years >> I found a way not exact but just take %of neutrophils and multiply by >> white count,what this indicates is how immune compromised your are. In fact >> I think its the most important count you can get. Neutrophils indicated how >> your system is retaining bug fighting capabilities and they call it ANC I >> still figure mine out twice week. If I have all the information like % >> bands and Segments as in the formula above will use it. but most times I >> just use my method. I hope I did not confuse you but if your neutrophils >> are up (see my report) that's good but if low avoid crowded spaces ( I miss >> church) >> >> >> >> >> >> >> >> >> >> >> >> >> On Friday, September 26, 2014 10:03 PM, Marty Gartenberg < >> [email protected]> wrote: >> >> >> >> >> >> Hi Jeanie, >> >> >> Pain especially severe pain is the worst thing that someone could ever go >> through. I have been through a lot of severe pain in my life. Having my >> spleen surgically removed was really bad but then I had some very severe >> gout attacks, but even worse was two bouts with the shingles. However the >> absolutly worst pain in my life were the terrible mouth sores when I went >> through my bone marrow transplant. It hurt so badly that I was put on a >> morphine drip that I was able to control with a button. The only thing that >> it did was to make me hullicinate and throw up. It got so bad that I >> removed the morphine tube and went on with the pain. I just decided to put >> my mind in a different place. The transplant nurse gowned up and came into >> my bubble and held my hand in her gloved hand and whispered through her >> mask three words into my ear. I always remembered those three words to this >> day. She said "It's only temporary" and even though I suffered greatly I >> would say those words over and over again. They helped me deal with the >> pain, but it still hurt and I wouldn't let my mind soak it in. >> >> >> 18's, >> >> >> Marty >> >> >> >> On Fri, Sep 26, 2014 at 9:50 AM, ICANDOALLTTC via CMLHope < >> [email protected]> wrote: >> >> >> Hi Marty and so glad you are home; I pray that everything goes well. >> As we walk through this life, it seems pain is very much a part of it. I >> try to cope, and I remember Millie telling me that she would cope with the >> pain as well as she could. My sister has knee pain and I would tell Millie >> that she woke up each morning in pain; so I told her we could all join >> together in a prayer in the morning as we all woke up with pain. >> >> Coping with pain is hard because you don't know what is safe to take for >> the pain. As Sprycel is already a blood thinner, and most pain pills are >> blood thinners, you have to be careful that you don't get your blood too >> thin. I believe Millie had that problem, and she finally got a machine that >> would tell her how thin her blood was. However, as my platelets are high, I >> probably don't need to worry about the blood being too thin. Those with low >> platelets would have to watch it carefully. >> >> I was taking Tramadol for pain and it helped some. I learned recently >> that it has been put on controlled drug list. My doctor never told me this >> drug could be addictive, so I took it at least once a day. Now I find out >> that it is addictive, and that you can't just go off of it. You have to cut >> down gradually as it affects the brain. If anyone is on this drug, google >> it and it will tell you all about it. >> >> I had my visit at Moffit yesterday; it was good news. My platelets are >> back in the normal range but still higher than I would like at 362k/ul. WBC >> were 7.75 k/ul and a little higher than I would like. My onc however was >> happy with them and said I could come back in 3 months. I told him about my >> jaw pain, and he said to have the dentist x-ray my jaw, so I will have that >> done soon; if the jaw is ok then the onc might want to do other test. The >> pain in my jaw is much better, but not all the way well. >> >> ANC was high; anyone know anything about this? >> Thanks Blessings, >> Jeanie<3 >> >> Here is a copy of my blood results for those that are interested: >> >> >> >> >> >> >> >> In a message dated 9/23/2014 7:54:08 P.M. Eastern Daylight Time, >> [email protected] writes: >> Hi Jeannie and everyone else. >> >> I had my surgery today and just got back home. Hopefully everything >> went well but I won't know for sure until I get my dialysis tomorrow. >> >> I am still a bit woozy and starting to have more pain right now so I >> will continue this some other time. >> >> Jeannie, I just want to say how badly I feel that you have such pain. >> I hope that it gets better very soon. >> >> You see that this CML site is something that makes all of us really >> care for and about each other. We are actually just like a big loving >> family. Sometimes people that haven't experienced what we go through >> really have no idea of what we do go through. >> >> 18's to each and every one of us. Today starts the Jewish New Year and >> as such we are all hopefully written into the book of life. No matter >> who you may be no matter what your religious beliefs are I truly wish >> all of you a healthy life. >> >> I would personally like to thank everyone for all of their good >> thoughts and prayers that you are saying for me and to everyone else. >> >> 18's >> >> Marty >> >> > To unsubscribe from this group and stop receiving emails from it, send >> an >> > email to mailto:cmlhope%[email protected]. >> > For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to mailto:cmlhope%[email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> Back to top <#148dc53640c4fa63_148bbcef7677c233_digest_top> >> You received this digest because you're subscribed to updates for >> this group. 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