This video explains more about PCR testing and what it means. One of the societies that I support is The National Bone Marrow Transplant Link out of Detroit Michigan and they just sent this.
http://www.lls.org/#/diseaseinformation/leukemia/chronicmyeloidleukemia/ 18's, Marty On Wed, Oct 15, 2014 at 4:34 PM, Marty Gartenberg <[email protected]> wrote: > Hi Richard, > > It sounds to me that your doing fine in spite of what your doctor told > you. I remember there was a doctor when I first got sick and he told me and > my wife that I only had a short time left. > > Funny thing, that was 25 years ago and he died but I'm still here... > > 18's my friend, > > Marty > > On Wed, Oct 15, 2014 at 12:23 AM, Richard H <[email protected]> wrote: > >> Thanks Marty. I am not worried yet. I am confused because my body is >> telling me how great I feel and the ONC is telling me that my abl-bcr is >> rising 4-5 points every 3 months. My Cardiologist stopped two of my heart >> meds after 23 1/2 years and the results have amazing. My blood pressure has >> risen to the old/new level of 140/90. This has given me energy to do some >> walking, and decrease my weekly cleaning by about an hour. I am walking >> about 2 blocks to the mail box (one teeny mound not the side of the >> Mountain). >> >> Yes, I am in the hands of God. >> >> 18's >> >> Richard H. >> >> On Tuesday, October 14, 2014 7:02:40 AM UTC-5, wa2yyx wrote: >> >>> Dont worry Richard everything will work out, keep the faith! >>> >>> 18's, >>> >>> Marty >>> >>> On Tue, Oct 14, 2014 at 12:14 AM, Richard H <[email protected]> >>> wrote: >>> >>>> I went to see my ONC to get my results today My counts are still >>>> rising so the search is starting for my new TKI. He is still waiting for >>>> one more test result that may rule out some of the TKI's due to drug >>>> reaction to the other drugs I am taking. He was running a bit behind that >>>> stresses him because he wants to give as much time as he can to his >>>> patients. I was scheduled for 12:30 and I heard him talking to a patient >>>> just before he came in and his next patient was being ushered to in for >>>> there prep for 1 PM. The nurses have told me for many times they have to >>>> tell him to eat. I will post more when I get more info. When He decides >>>> which TKI will work best I will have to see another ONC at the VA to get my >>>> RX approved. >>>> >>>> Richard H. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to CMLHope-u...@ >>>> googlegroups.com >>>> For more options, visit this group at http://groups.google.com/ >>>> group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send >>>> an email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> >>> >>> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
