Hi Marty, Great to hear from you. Yes I should. He's a great doctor but doesn't discuss your counts. If they are good he just says everything is good. He deals with cancers so I would imagine he has a lot of sick patients. He also is a doctor dealing with mostly seniors with cancer. I hope you are good today. I am okay. I am enjoying the cooler weather. Good luck with all. Blessing Jeanie
Sent from my iPhone > On Oct 21, 2014, at 8:51 PM, Marty Gartenberg <[email protected]> wrote: > > Hi Jeanie, > > Maybe you should get your onc to watch the video. > > 18's, > > Marty > >> On Tue, Oct 21, 2014 at 6:06 PM, icandoallttc via CMLHope >> <[email protected]> wrote: >> Thanks for that Marty. I wish my onc would go over results like that! He >> doesn't even show them to me during our visits. He just says everything is >> ok. >> I would like everyone's input on this please. It will be interesting to see >> how our doctors treat our counts and etc. >> I always get a copy of my counts from my nurse. >> I'm good tonight and hope everyone is ok. >> Jeanie >> >> Sent from my iPhone >> >>> On Oct 21, 2014, at 4:16 PM, Marty Gartenberg <[email protected]> wrote: >>> >>> This video explains more about PCR testing and what it means. >>> >>> One of the societies that I support is The National Bone Marrow Transplant >>> Link out of Detroit Michigan and they just sent this. >>> >>> http://www.lls.org/#/diseaseinformation/leukemia/chronicmyeloidleukemia/ >>> >>> 18's, >>> >>> Marty >>> >>>> On Wed, Oct 15, 2014 at 4:34 PM, Marty Gartenberg <[email protected]> wrote: >>>> Hi Richard, >>>> >>>> It sounds to me that your doing fine in spite of what your doctor told >>>> you. I remember there was a doctor when I first got sick and he told me >>>> and my wife that I only had a short time left. >>>> >>>> Funny thing, that was 25 years ago and he died but I'm still here... >>>> >>>> 18's my friend, >>>> >>>> Marty >>>> >>>>> On Wed, Oct 15, 2014 at 12:23 AM, Richard H <[email protected]> wrote: >>>>> Thanks Marty. I am not worried yet. I am confused because my body is >>>>> telling me how great I feel and the ONC is telling me that my abl-bcr is >>>>> rising 4-5 points every 3 months. My Cardiologist stopped two of my >>>>> heart meds after 23 1/2 years and the results have amazing. My blood >>>>> pressure has risen to the old/new level of 140/90. This has given me >>>>> energy to do some walking, and decrease my weekly cleaning by about an >>>>> hour. I am walking about 2 blocks to the mail box (one teeny mound not >>>>> the side of the Mountain). >>>>> >>>>> Yes, I am in the hands of God. >>>>> >>>>> 18's >>>>> >>>>> Richard H. >>>>> >>>>>> On Tuesday, October 14, 2014 7:02:40 AM UTC-5, wa2yyx wrote: >>>>>> Dont worry Richard everything will work out, keep the faith! >>>>>> >>>>>> 18's, >>>>>> >>>>>> Marty >>>>>> >>>>>>> On Tue, Oct 14, 2014 at 12:14 AM, Richard H <[email protected]> >>>>>>> wrote: >>>>>>> I went to see my ONC to get my results today My counts are still >>>>>>> rising so the search is starting for my new TKI. He is still waiting >>>>>>> for one more test result that may rule out some of the TKI's due to >>>>>>> drug reaction to the other drugs I am taking. He was running a bit >>>>>>> behind that stresses him because he wants to give as much time as he >>>>>>> can to his patients. I was scheduled for 12:30 and I heard him talking >>>>>>> to a patient just before he came in and his next patient was being >>>>>>> ushered to in for there prep for 1 PM. The nurses have told me for >>>>>>> many times they have to tell him to eat. I will post more when I get >>>>>>> more info. When He decides which TKI will work best I will have to see >>>>>>> another ONC at the VA to get my RX approved. >>>>>>> >>>>>>> Richard H. >>>>>>> >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> ------------------------------------------------- >>>>>>> >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To post to this group, send email to [email protected] >>>>>>> To unsubscribe from this group, send email to >>>>>>> [email protected] >>>>>>> For more options, visit this group at >>>>>>> http://groups.google.com/group/CMLHope >>>>>>> --- >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>> an email to [email protected]. >>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
