thanks for the video..IT was great!!!! Hope you are well and feeling a bit better..hang in there..love, Beth
-----Original Message----- From: Marty Gartenberg <[email protected]> To: cmlhope <[email protected]> Sent: Tue, Oct 21, 2014 6:51 pm Subject: Re: [CMLHope] Onc Visit Hi Jeanie, Maybe you should get your onc to watch the video. 18's, Marty On Tue, Oct 21, 2014 at 6:06 PM, icandoallttc via CMLHope <[email protected]> wrote: Thanks for that Marty. I wish my onc would go over results like that! He doesn't even show them to me during our visits. He just says everything is ok. I would like everyone's input on this please. It will be interesting to see how our doctors treat our counts and etc. I always get a copy of my counts from my nurse. I'm good tonight and hope everyone is ok. Jeanie Sent from my iPhone On Oct 21, 2014, at 4:16 PM, Marty Gartenberg <[email protected]> wrote: This video explains more about PCR testing and what it means. One of the societies that I support is The National Bone Marrow Transplant Link out of Detroit Michigan and they just sent this. http://www.lls.org/#/diseaseinformation/leukemia/chronicmyeloidleukemia/ 18's, Marty On Wed, Oct 15, 2014 at 4:34 PM, Marty Gartenberg <[email protected]> wrote: Hi Richard, It sounds to me that your doing fine in spite of what your doctor told you. I remember there was a doctor when I first got sick and he told me and my wife that I only had a short time left. Funny thing, that was 25 years ago and he died but I'm still here... 18's my friend, Marty On Wed, Oct 15, 2014 at 12:23 AM, Richard H <[email protected]> wrote: Thanks Marty. I am not worried yet. I am confused because my body is telling me how great I feel and the ONC is telling me that my abl-bcr is rising 4-5 points every 3 months. My Cardiologist stopped two of my heart meds after 23 1/2 years and the results have amazing. My blood pressure has risen to the old/new level of 140/90. This has given me energy to do some walking, and decrease my weekly cleaning by about an hour. I am walking about 2 blocks to the mail box (one teeny mound not the side of the Mountain). Yes, I am in the hands of God. 18's Richard H. On Tuesday, October 14, 2014 7:02:40 AM UTC-5, wa2yyx wrote: Dont worry Richard everything will work out, keep the faith! 18's, Marty On Tue, Oct 14, 2014 at 12:14 AM, Richard H <[email protected]> wrote: I went to see my ONC to get my results today My counts are still rising so the search is starting for my new TKI. He is still waiting for one more test result that may rule out some of the TKI's due to drug reaction to the other drugs I am taking. He was running a bit behind that stresses him because he wants to give as much time as he can to his patients. I was scheduled for 12:30 and I heard him talking to a patient just before he came in and his next patient was being ushered to in for there prep for 1 PM. The nurses have told me for many times they have to tell him to eat. I will post more when I get more info. When He decides which TKI will work best I will have to see another ONC at the VA to get my RX approved. Richard H. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. 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