Hi Jeanie, Maybe you should get your onc to watch the video.
18's, Marty On Tue, Oct 21, 2014 at 6:06 PM, icandoallttc via CMLHope < [email protected]> wrote: > Thanks for that Marty. I wish my onc would go over results like that! > He doesn't even show them to me during our visits. He just says everything > is ok. > I would like everyone's input on this please. It will be interesting to > see how our doctors treat our counts and etc. > I always get a copy of my counts from my nurse. > I'm good tonight and hope everyone is ok. > Jeanie > > Sent from my iPhone > > On Oct 21, 2014, at 4:16 PM, Marty Gartenberg <[email protected]> wrote: > > This video explains more about PCR testing and what it means. > > One of the societies that I support is The National Bone Marrow Transplant > Link out of Detroit Michigan and they just sent this. > > http://www.lls.org/#/diseaseinformation/leukemia/chronicmyeloidleukemia/ > > 18's, > > Marty > > On Wed, Oct 15, 2014 at 4:34 PM, Marty Gartenberg <[email protected]> > wrote: > >> Hi Richard, >> >> It sounds to me that your doing fine in spite of what your doctor told >> you. I remember there was a doctor when I first got sick and he told me and >> my wife that I only had a short time left. >> >> Funny thing, that was 25 years ago and he died but I'm still here... >> >> 18's my friend, >> >> Marty >> >> On Wed, Oct 15, 2014 at 12:23 AM, Richard H <[email protected]> wrote: >> >>> Thanks Marty. I am not worried yet. I am confused because my body is >>> telling me how great I feel and the ONC is telling me that my abl-bcr is >>> rising 4-5 points every 3 months. My Cardiologist stopped two of my heart >>> meds after 23 1/2 years and the results have amazing. My blood pressure has >>> risen to the old/new level of 140/90. This has given me energy to do some >>> walking, and decrease my weekly cleaning by about an hour. I am walking >>> about 2 blocks to the mail box (one teeny mound not the side of the >>> Mountain). >>> >>> Yes, I am in the hands of God. >>> >>> 18's >>> >>> Richard H. >>> >>> On Tuesday, October 14, 2014 7:02:40 AM UTC-5, wa2yyx wrote: >>> >>>> Dont worry Richard everything will work out, keep the faith! >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>> On Tue, Oct 14, 2014 at 12:14 AM, Richard H <[email protected]> >>>> wrote: >>>> >>>>> I went to see my ONC to get my results today My counts are still >>>>> rising so the search is starting for my new TKI. He is still waiting for >>>>> one more test result that may rule out some of the TKI's due to drug >>>>> reaction to the other drugs I am taking. He was running a bit behind >>>>> that >>>>> stresses him because he wants to give as much time as he can to his >>>>> patients. I was scheduled for 12:30 and I heard him talking to a patient >>>>> just before he came in and his next patient was being ushered to in for >>>>> there prep for 1 PM. The nurses have told me for many times they have to >>>>> tell him to eat. I will post more when I get more info. When He decides >>>>> which TKI will work best I will have to see another ONC at the VA to get >>>>> my >>>>> RX approved. >>>>> >>>>> Richard H. >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google >>>>> Groups "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to CMLHope-u...@ >>>>> googlegroups.com >>>>> For more options, visit this group at http://groups.google.com/ >>>>> group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google >>>>> Groups "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>> an email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>> >>>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >> >> > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
