Glad you liked the video. Today is another dialysis day for me, hopefully a kidney transplant will come soon.
18's, Marty On Wed, Oct 22, 2014 at 12:59 AM, bkbarney via CMLHope < [email protected]> wrote: > thanks for the video..IT was great!!!! Hope you are well and feeling a bit > better..hang in there..love, Beth > > > -----Original Message----- > From: Marty Gartenberg <[email protected]> > To: cmlhope <[email protected]> > Sent: Tue, Oct 21, 2014 6:51 pm > Subject: Re: [CMLHope] Onc Visit > > Hi Jeanie, > > Maybe you should get your onc to watch the video. > > 18's, > > Marty > > On Tue, Oct 21, 2014 at 6:06 PM, icandoallttc via CMLHope < > [email protected]> wrote: > >> Thanks for that Marty. I wish my onc would go over results like that! >> He doesn't even show them to me during our visits. He just says >> everything is ok. >> I would like everyone's input on this please. It will be interesting to >> see how our doctors treat our counts and etc. >> I always get a copy of my counts from my nurse. >> I'm good tonight and hope everyone is ok. >> Jeanie >> >> Sent from my iPhone >> >> On Oct 21, 2014, at 4:16 PM, Marty Gartenberg <[email protected]> wrote: >> >> This video explains more about PCR testing and what it means. >> >> One of the societies that I support is The National Bone Marrow >> Transplant Link out of Detroit Michigan and they just sent this. >> >> http://www.lls.org/#/diseaseinformation/leukemia/chronicmyeloidleukemia/ >> >> >> 18's, >> >> Marty >> >> On Wed, Oct 15, 2014 at 4:34 PM, Marty Gartenberg <[email protected]> >> wrote: >> >>> Hi Richard, >>> >>> It sounds to me that your doing fine in spite of what your doctor told >>> you. I remember there was a doctor when I first got sick and he told me and >>> my wife that I only had a short time left. >>> >>> Funny thing, that was 25 years ago and he died but I'm still here... >>> >>> 18's my friend, >>> >>> Marty >>> >>> On Wed, Oct 15, 2014 at 12:23 AM, Richard H <[email protected]> >>> wrote: >>> >>>> Thanks Marty. I am not worried yet. I am confused because my body >>>> is telling me how great I feel and the ONC is telling me that my abl-bcr is >>>> rising 4-5 points every 3 months. My Cardiologist stopped two of my heart >>>> meds after 23 1/2 years and the results have amazing. My blood pressure has >>>> risen to the old/new level of 140/90. This has given me energy to do some >>>> walking, and decrease my weekly cleaning by about an hour. I am walking >>>> about 2 blocks to the mail box (one teeny mound not the side of the >>>> Mountain). >>>> >>>> Yes, I am in the hands of God. >>>> >>>> 18's >>>> >>>> Richard H. >>>> >>>> On Tuesday, October 14, 2014 7:02:40 AM UTC-5, wa2yyx wrote: >>>> >>>>> Dont worry Richard everything will work out, keep the faith! >>>>> >>>>> 18's, >>>>> >>>>> Marty >>>>> >>>>> On Tue, Oct 14, 2014 at 12:14 AM, Richard H <[email protected]> >>>>> wrote: >>>>> >>>>>> I went to see my ONC to get my results today My counts are still >>>>>> rising so the search is starting for my new TKI. He is still waiting for >>>>>> one more test result that may rule out some of the TKI's due to drug >>>>>> reaction to the other drugs I am taking. He was running a bit behind >>>>>> that >>>>>> stresses him because he wants to give as much time as he can to his >>>>>> patients. I was scheduled for 12:30 and I heard him talking to a patient >>>>>> just before he came in and his next patient was being ushered to in for >>>>>> there prep for 1 PM. The nurses have told me for many times they have to >>>>>> tell him to eat. I will post more when I get more info. When He decides >>>>>> which TKI will work best I will have to see another ONC at the VA to get >>>>>> my >>>>>> RX approved. >>>>>> >>>>>> Richard H. >>>>>> >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to [email protected] >>>>>> To unsubscribe from this group, send email to CMLHope-u...@ >>>>>> googlegroups.com >>>>>> For more options, visit this group at http://groups.google.com/ >>>>>> group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>> send an email to [email protected]. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>> >>>>> >>>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send >>>> an email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> >>> >>> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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