Thanks Michele. Those questions are awesome and so is your blog. Sue On Friday, November 14, 2014 2:18:47 PM UTC-5, Michele, Loves to Dance! wrote:
> Hi Sue, > > So sorry you had to "join" us! But glad that you found us; there is a > wealth of information that comes from the collaboration of many. > > There are also Facebook groups that you may be interested in, also. > > I have had CML for 3 years 9 months and what I can tell you is that it > does get easier with time, and that it also can be a roller coaster! > > I have chronicled my journey in a blog. This is a post of questions that > you may wish to ask your oncologist. > > Hope this helps! > Important Questions for the Newly Diagnosed > <http://www.leukemiasurvivor.co/2011/08/important-questions-for-newly-diagnosed.html> > > Best wishes, > Michele > > On Wed, Nov 12, 2014 at 8:23 AM, smgedit <[email protected] <javascript:> > > wrote: > >> I was diagnosed with CML a little over a month ago and had a bone marrow >> biopsy and started taking Gleevec last week. I'm trying to learn as much >> as I can about CML and my oncologist is great about giving detailed >> explanations and answering questions. But I was wondering if anyone else >> ever got what I consider a strange reaction from others about my news. In >> the past week, I've had people say the following things to me which upset >> me a lot. >> >> "So what's the big deal? So you have to take a pill...I have to take this >> antibiotic for my tooth infection this week too." >> >> "There is so a cure for leukemia. Plenty of people are cancer free. You >> don't know what you are talking about." >> (This after explaining about the drugs and "response," vs. "remission." >> etc.) >> >> "Well I hope you have a speedy recovery. Good luck." >> >> I know I can't put my energy into dealing with this right now but it is >> weighing on my mind anyway. It made me happy to find this group online >> where I know people can at least "get" it and where some of you have been >> living with CML for quite a while. >> >> Anyway, that's my first post. Nice to meet you. >> >> Sue >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> <javascript:> >> To unsubscribe from this group, send email to >> [email protected] <javascript:> >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected] <javascript:>. >> For more options, visit https://groups.google.com/d/optout. >> > > > > -- > [email protected] > www.LearntoBallroomDanceOnline.com > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
