You are welcome Susan, I hope it helps!

Michele

On Fri, Nov 14, 2014 at 1:22 PM, smgedit <[email protected]> wrote:

> Thanks Michele.
> Those questions are awesome and so is your blog.
> Sue
>
> On Friday, November 14, 2014 2:18:47 PM UTC-5, Michele, Loves to Dance!
> wrote:
>
>> Hi Sue,
>>
>> So sorry you had to "join" us! But glad that you found us; there is a
>> wealth of information that comes from the collaboration of many.
>>
>> There are also Facebook groups that you may be interested in, also.
>>
>> I have had CML for 3 years 9 months and what I can tell you is that it
>> does get easier with time, and that it also can be a roller coaster!
>>
>> I have chronicled my journey in a blog. This is a post of questions that
>> you may wish to ask your oncologist.
>>
>> Hope this helps!
>> Important Questions for the Newly Diagnosed
>> <http://www.leukemiasurvivor.co/2011/08/important-questions-for-newly-diagnosed.html>
>>
>> Best wishes,
>> Michele
>>
>> On Wed, Nov 12, 2014 at 8:23 AM, smgedit <[email protected]> wrote:
>>
>>> I was diagnosed with CML a little over a month ago and had a bone marrow
>>> biopsy and started taking Gleevec last week.  I'm trying to learn as much
>>> as I can about CML and my oncologist is great about giving detailed
>>> explanations and answering questions. But I was wondering if anyone else
>>> ever got what I consider a strange reaction from others about my news. In
>>> the past week, I've had people say the following things to me which upset
>>> me a lot.
>>>
>>> "So what's the big deal? So you have to take a pill...I have to take
>>> this antibiotic for my tooth infection this week too."
>>>
>>> "There is so a cure for leukemia. Plenty of people are cancer free. You
>>> don't know what you are talking about."
>>> (This after explaining about the drugs and "response," vs. "remission."
>>> etc.)
>>>
>>> "Well I hope you have a speedy recovery. Good luck."
>>>
>>> I know I can't put my energy into dealing with this right now but it is
>>> weighing on my mind anyway. It made me happy to find this group online
>>> where I know people can at least "get" it and where some of you have been
>>> living with CML for quite a while.
>>>
>>> Anyway, that's my first post. Nice to meet you.
>>>
>>> Sue
>>>
>>> --
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>>
>>
>>
>> --
>> [email protected]
>> www.LearntoBallroomDanceOnline.com
>>
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