Hi Sue, So sorry you had to "join" us! But glad that you found us; there is a wealth of information that comes from the collaboration of many.
There are also Facebook groups that you may be interested in, also. I have had CML for 3 years 9 months and what I can tell you is that it does get easier with time, and that it also can be a roller coaster! I have chronicled my journey in a blog. This is a post of questions that you may wish to ask your oncologist. Hope this helps! Important Questions for the Newly Diagnosed <http://www.leukemiasurvivor.co/2011/08/important-questions-for-newly-diagnosed.html> Best wishes, Michele On Wed, Nov 12, 2014 at 8:23 AM, smgedit <[email protected]> wrote: > I was diagnosed with CML a little over a month ago and had a bone marrow > biopsy and started taking Gleevec last week. I'm trying to learn as much > as I can about CML and my oncologist is great about giving detailed > explanations and answering questions. But I was wondering if anyone else > ever got what I consider a strange reaction from others about my news. In > the past week, I've had people say the following things to me which upset > me a lot. > > "So what's the big deal? So you have to take a pill...I have to take this > antibiotic for my tooth infection this week too." > > "There is so a cure for leukemia. Plenty of people are cancer free. You > don't know what you are talking about." > (This after explaining about the drugs and "response," vs. "remission." > etc.) > > "Well I hope you have a speedy recovery. Good luck." > > I know I can't put my energy into dealing with this right now but it is > weighing on my mind anyway. It made me happy to find this group online > where I know people can at least "get" it and where some of you have been > living with CML for quite a while. > > Anyway, that's my first post. Nice to meet you. > > Sue > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- [email protected] www.LearntoBallroomDanceOnline.com -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
