Hi David So good to hear from you. Marty sent us a site not long ago about a study for going off Gleevec. There are certain things you must meet to be in the study. Glad you are negative. Blessings Jeanie🎅
Sent from my iPhone > On Dec 13, 2014, at 12:00 PM, [email protected] wrote: > > Hi, > > Hello everyone. > > I have posted here long ago, when I was first diagnosed with CML, in 2003. > At the time, I started on Gleevec, and immediately had a Complete Remission, > via FISH. Unfortunately, I also showed signs of CLL, which was confirmed. > The CLL has been on "watchful waiting" until now. > > Recently my counts got very negative, due to the CLL, and I went to Mayo and > found I have a 17p deletion, which is quite negative. For the CLL, I will go > on Ibrutinib, a targeted therapy. Since Ibrutinib is a tyrosine kinase > inhibitor, I will need to stop Gleevec, at least for a while. > > I kind of wish my onc had been doing PCR's for a while, but at Mayo they did > one and found my CML was undetectable. > > Can anyone point me to any studies about stopping Gleevec after long periods > (in my case around 10 years) of Complete (or molecular) remission? > > The current plan is to check with regular PCR's for a reemergence of the > BCR-ABL. > > Best wishes to all... > > David > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
