Have a great time Jeanie and Merry Christmas as well as a very happy and healthy New Year to you and everyone else.
18's Marty On Sat, Dec 20, 2014 at 12:14 PM, 'Icandoallttc' via CMLHope < [email protected]> wrote: > Merry Christmas to all > I'm at daughters and having a family party tonight. Loads if family, > food, and love > Blessing to all. > Jeanie[image: š ][image: š ]ā¤ļø > > Sent from my iPhone > > On Dec 17, 2014, at 2:19 PM, "David Bradley" <[email protected]> wrote: > > Thank you, and may God bless you Beth. My day to day life is not bad. > I struggle only with the unknowns, which I guess is true of all of us. Iād > love to know more about your journey. > > I am off to see my onc now, and tomorrow, Ibrutin. > > *From:* bkbarney via CMLHope <[email protected]> > *Sent:* Wednesday, December 17, 2014 12:35 PM > *To:* [email protected] > *Subject:* Re: [CMLHope] Dual Diagnosis: CLL/ CML > > Good luck to you David. It sounds so hard..glad you reconnected > here....after being diagnosed and doing well for 12 years....hope the meds > support you well with the CLL. happiest of holidays to you and yours. Beth. > > > > -----Original Message----- > From: Richard H <[email protected]> > To: cmlhope <[email protected]> > Cc: icandoallttc <[email protected]> > Sent: Sun, Dec 14, 2014 12:33 am > Subject: Re: [CMLHope] Dual Diagnosis: CLL/ CML > > I could not meet the requirements. I have too many other health issues > that would interfere with the results they were looking for. When I was > first diagnosed they ruled me out of a BMT for the same reasons. > > Richard H. > > On Saturday, December 13, 2014 2:07:12 PM UTC-6, Icandoallttc wrote: > >> Hi David >> So good to hear from you. >> Marty sent us a site not long ago about a study for going off Gleevec. >> There are certain things you must meet to be in the study. >> Glad you are negative. >> Blessings >> Jeanie >> >> Sent from my iPhone >> >> On Dec 13, 2014, at 12:00 PM, [email protected] wrote: >> >> Hi, >> >> Hello everyone. >> >> I have posted here long ago, when I was first diagnosed with CML, in >> 2003. At the time, I started on Gleevec, and immediately had a Complete >> Remission, via FISH. Unfortunately, I also showed signs of CLL, which was >> confirmed. The CLL has been on "watchful waiting" until now. >> >> Recently my counts got very negative, due to the CLL, and I went to Mayo >> and found I have a 17p deletion, which is quite negative. For the CLL, I >> will go on Ibrutinib, a targeted therapy. Since Ibrutinib is a tyrosine >> kinase inhibitor, I will need to stop Gleevec, at least for a while. >> >> I kind of wish my onc had been doing PCR's for a while, but at Mayo they >> did one and found my CML was undetectable. >> >> Can anyone point me to any studies about stopping Gleevec after long >> periods (in my case around 10 years) of Complete (or molecular) remission? >> >> The current plan is to check with regular PCR's for a reemergence of the >> BCR-ABL. >> >> Best wishes to all... >> >> David >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to CMLHope-u...@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to a topic in the > Google Groups "CMLHope" group. > To unsubscribe from this topic, visit > https://groups.google.com/d/topic/cmlhope/hz_PZAN5b-A/unsubscribe. > To unsubscribe from this group and all its topics, send an email to > [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
