I could not meet the requirements. I have too many other health issues that would interfere with the results they were looking for. When I was first diagnosed they ruled me out of a BMT for the same reasons.
Richard H. On Saturday, December 13, 2014 2:07:12 PM UTC-6, Icandoallttc wrote: > Hi David > So good to hear from you. > Marty sent us a site not long ago about a study for going off Gleevec. > There are certain things you must meet to be in the study. > Glad you are negative. > Blessings > Jeanie🎅 > > Sent from my iPhone > > On Dec 13, 2014, at 12:00 PM, [email protected] <javascript:> wrote: > > Hi, > > Hello everyone. > > I have posted here long ago, when I was first diagnosed with CML, in 2003. > At the time, I started on Gleevec, and immediately had a Complete > Remission, via FISH. Unfortunately, I also showed signs of CLL, which was > confirmed. The CLL has been on "watchful waiting" until now. > > Recently my counts got very negative, due to the CLL, and I went to Mayo > and found I have a 17p deletion, which is quite negative. For the CLL, I > will go on Ibrutinib, a targeted therapy. Since Ibrutinib is a tyrosine > kinase inhibitor, I will need to stop Gleevec, at least for a while. > > I kind of wish my onc had been doing PCR's for a while, but at Mayo they > did one and found my CML was undetectable. > > Can anyone point me to any studies about stopping Gleevec after long > periods (in my case around 10 years) of Complete (or molecular) remission? > > The current plan is to check with regular PCR's for a reemergence of the > BCR-ABL. > > Best wishes to all... > > David > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
