Merry Christmas to all I'm at daughters and having a family party tonight. Loads if family, food, and love Blessing to all. Jeanie🎅🎅❤️
Sent from my iPhone > On Dec 17, 2014, at 2:19 PM, "David Bradley" <[email protected]> wrote: > > Thank you, and may God bless you Beth. My day to day life is not bad. I > struggle only with the unknowns, which I guess is true of all of us. I’d > love to know more about your journey. > > I am off to see my onc now, and tomorrow, Ibrutin. > > From: bkbarney via CMLHope > Sent: Wednesday, December 17, 2014 12:35 PM > To: [email protected] > Subject: Re: [CMLHope] Dual Diagnosis: CLL/ CML > > Good luck to you David. It sounds so hard..glad you reconnected here....after > being diagnosed and doing well for 12 years....hope the meds support you well > with the CLL. happiest of holidays to you and yours. Beth. > > > > -----Original Message----- > From: Richard H <[email protected]> > To: cmlhope <[email protected]> > Cc: icandoallttc <[email protected]> > Sent: Sun, Dec 14, 2014 12:33 am > Subject: Re: [CMLHope] Dual Diagnosis: CLL/ CML > > I could not meet the requirements. I have too many other health issues that > would interfere with the results they were looking for. When I was first > diagnosed they ruled me out of a BMT for the same reasons. > > Richard H. > >> On Saturday, December 13, 2014 2:07:12 PM UTC-6, Icandoallttc wrote: >> Hi David >> So good to hear from you. >> Marty sent us a site not long ago about a study for going off Gleevec. >> There are certain things you must meet to be in the study. >> Glad you are negative. >> Blessings >> Jeanie >> >> Sent from my iPhone >> >>> On Dec 13, 2014, at 12:00 PM, [email protected] wrote: >>> >>> Hi, >>> >>> Hello everyone. >>> >>> I have posted here long ago, when I was first diagnosed with CML, in 2003. >>> At the time, I started on Gleevec, and immediately had a Complete >>> Remission, via FISH. Unfortunately, I also showed signs of CLL, which was >>> confirmed. The CLL has been on "watchful waiting" until now. >>> >>> Recently my counts got very negative, due to the CLL, and I went to Mayo >>> and found I have a 17p deletion, which is quite negative. For the CLL, I >>> will go on Ibrutinib, a targeted therapy. Since Ibrutinib is a tyrosine >>> kinase inhibitor, I will need to stop Gleevec, at least for a while. >>> >>> I kind of wish my onc had been doing PCR's for a while, but at Mayo they >>> did one and found my CML was undetectable. >>> >>> Can anyone point me to any studies about stopping Gleevec after long >>> periods (in my case around 10 years) of Complete (or molecular) remission? >>> >>> The current plan is to check with regular PCR's for a reemergence of the >>> BCR-ABL. >>> >>> Best wishes to all... >>> >>> David >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to a topic in the Google > Groups "CMLHope" group. > To unsubscribe from this topic, visit > https://groups.google.com/d/topic/cmlhope/hz_PZAN5b-A/unsubscribe. > To unsubscribe from this group and all its topics, send an email to > [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
