Hi Susan and thanks for your prayers. I have had the same problem. I got real sick about 4 months ago and have been I bed for most if that time. I didn't know my platelets were so high because I had 3 months in between drs visits but I knew something was wrong. I don't think staying in bed, if you are so tired, is bad. Just do your normal activities and walk some if possible. Eat well and do massages daily. Are you drinking lots of water? I have to drink 2-3 quarts with new meds. That is hard for me because I'm a sipper and not a glugger hehe. How is you hmg? Have you checked for anemia? Try to have some liver at least once a week and fish 3 times weekly. Prayers
Blessings Jeanie 18's 🐠🐠 > On Jan 26, 2015, at 2:54 PM, "'Susan Zimmerman' via CMLHope" > <[email protected]> wrote: > > Hi Jeanie, > Will be praying and believing with you that this will be easily tolerated by > your body and counts will go down very quickly. > > I can't seem to want to stay out of the bed very long lately. Just > exhausted, don't know why, trying different things. I am only on 100 mg a > day of bosulif and can't imagine that's causing it. What does anybody else > think? We upped my antidepressant and lowered my blood pressure med to see > if this helps. Going to a cardiologist soon. > > Everyone, we are all in this together and we'll all make it through!!! > > 18's, > Susan > > -----Original Message----- > From: 'Icandoallttc' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Mon, Jan 26, 2015 2:47 pm > Subject: Re: [CMLHope] Blood checkup platelets still over million > > Thanks Greenie and I will > > Blessings Jeanie 18's > > On Jan 26, 2015, at 2:15 PM, Myvety2k via CMLHope <[email protected]> > wrote: > >> Good Luck and think positive. >> >> greenie >> >> >> >> In a message dated 1/26/2015 2:00:25 P.M. Eastern Standard Time, >> [email protected] writes: >> Just took my first dose of ponatinib. He said to take 3--15 mg tablets >> daily to see if it would bring the counts down. >> Do this for 3 days and see him on thurs. >> There is danger of heart problems--blood clots--stroke and ect--/ real fun >> but what other choice do I have??? >> 1 baby aspirin daily and stay on the allopurinol daily. Hope every one is >> good. Let us know. >> Prayers >> >> Blessings Jeanie 18's >> >> > On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope" >> > <[email protected]> wrote: >> > >> > Hi all, >> > >> > >> > Blessings Jeanie 18's >> > >> > -- >> > -- >> > [CMLHope] >> > A support group of http://cmlhope.com >> > ------------------------------------------------- >> > >> > You received this message because you are subscribed to the Google Groups >> > "CMLHope" group. >> > To post to this group, send email to [email protected] >> > To unsubscribe from this group, send email to >> > [email protected] >> > For more options, visit this group at >> > http://groups.google.com/group/CMLHope >> > --- >> > You received this message because you are subscribed to the Google Groups >> > "CMLHope" group. >> > To unsubscribe from this group and stop receiving emails from it, send an >> > email to [email protected]. >> > For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
