Hi Rein So happy you found out what it is. I thought I had everything that Gleevec could dish out but I never did have that. My tongue would sometimes look purple. I am on third day of ponatinib. Developed really dry lips. So far so good. Get tested tomorrow to see if the blood counts have reduced any. My arms are still blue from Monday.
Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 23, 2015, at 7:49 AM, Rien Jonkers <[email protected]> wrote: > > I think I should share the news I finally got from the hospital : a blue > palate is a side effect caused by gleevec, as is shown by an article from the > Boston University; just google mucosal pigmentation imagining". > I am so glad I do not have mouth canes!!! > Carpe died, > Rien > > Op dinsdag 20 januari 2015 heeft 'Icandoallttc' via CMLHope > <[email protected]> het volgende geschreven: >> Hi Rien >> I understand exactly what you are feeling. Every day seems to be a >> challenge with cancer. Just hope for the best and have faith that it will >> all be alright. >> I always think if I wake up for another day I will face it bravely, but of >> course we do get down every now and then-- I think this is only a normal >> part if being a cancer survivor-- so fight on dear warrior. We are all >> thinking of you and praying daily for all our cml warriors. >> Blessings >> 18's >> 🐠🐠 >> >> Sent from my iPhone >> >>> On Jan 20, 2015, at 10:00 AM, Rien Jonkers <[email protected]> wrote: >>> >>> Thanks a lot, Peter. Unfortunately, it could not be the amalgam that caused >>> a tattoo.... I am still worried, I will get a call from the hospital in an >>> hour and of course I know that only a biopsy could point out if I am >>> suffering from another cancer (which would be my fourth)... I normally do >>> not get easily depressed, but for everybody there are some limits.... >>> However, thank you very much for having contacted me!! >>> Carpe diem, >>> >>> Rien >>> >>> 2015-01-20 14:15 GMT+01:00 Peter <[email protected]>: >>>> Hi Rien. >>>> There is an excellent explanation of "amalgam tattoos" in the good old >>>> wikipedia: >>>> http://en.wikipedia.org/wiki/Amalgam_tattoo >>>> >>>> Peter >>>> >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> >>> >>> -- >>> Dr. Marinus Jonkers >>> Ravenhoflaan 5 >>> NL- 4706 WD Roosendaal >>> Tel. +31 165 8 22128 >>> 117 Bd de la 1ère Armée, no. 21 >>> F – 83330 Le Beausset >>> Tél. +33 494 06 01 87 >>> email: [email protected] >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > > -- > Dr. Marinus Jonkers > Ravenhoflaan 5 > NL- 4706 WD Roosendaal > Tel. +31 165 8 22128 > 117 Bd de la 1ère Armée, no. 21 > F – 83330 Le Beausset > Tél. +33 494 06 01 87 > email: [email protected] > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
