Jeanie,
Glad to hear that platelets are on the way down! Just takes a bit more
patience and prayers. Are you feeling better? I know you just started
ponatinib.
God bless and keep you,
Joyce in IL
On Feb 6, 2015, at 9:03 AM, 'Icandoallttc' via CMLHope wrote:
> Good morning everyone
> My blood results are in and my platelets came down a little--1050
> million--WBC still at 14--still fighting.
>
> Prayers & Blessings Jeanie 18's 🐠🐠
>
> On Feb 4, 2015, at 4:35 PM, bkbarney via CMLHope <[email protected]>
> wrote:
>
>>
>> Good you have a few options to work with...Hopefully this one will work for
>> you in a bit of time. I am championing your warrior spirit!!
>>
>> Take care,
>> 18's Beth
>>
>> -----Original Message-----
>> From: 'Icandoallttc' via CMLHope <[email protected]>
>> To: cmlhope <[email protected]>
>> Sent: Wed, Feb 4, 2015 7:07 am
>> Subject: Re: [CMLHope] Ponatinib
>>
>> 11 years for me--still fighting !!! 9th day on ponatinib. Sure hope it
>> starts working. My onc says it's my last choice but there is one more tki I
>> haven't tried--bositinib--not sure if spelling.
>> Thanks for the uplift.
>>
>> Prayers & Blessings Jeanie 18's
>>
>> On Feb 4, 2015, at 12:56 AM, bkbarney via CMLHope <[email protected]>
>> wrote:
>>
>>> Thanks Greenie. You too are my inspiration.Fifteen years!!! God bless Dr.
>>> Druker! Five years for me February 12th. I was diagnosed at 48.
>>>
>>> Take good care and enjoy the warmth! Beth
>>>
>>>
>>> -----Original Message-----
>>> From: Myvety2k via CMLHope <[email protected]>
>>> To: cmlhope <[email protected]>
>>> Sent: Tue, Feb 3, 2015 8:31 pm
>>> Subject: Re: [CMLHope] Ponatinib
>>>
>>> Beth, get out the heating pad make sure it's a big one they make different
>>> sizes. I go fishing under the bridge going over to Sanibel sometimes. If
>>> you do come down here we will get together that's for sure. Just get
>>> better. My son Derek's wife Ruby, she has a massage and yoga wellness
>>> studio 118 North Clinton St., Suite 102 in Chicago. It's called Massage
>>> Evolved. website (massageevolved.com). They started a little over a year
>>> ago and seem to be doing very good. He called me over the weekend and told
>>> me about the snow. You miss Florida and I'm sorry I don't miss North West
>>> Indiana because of that weather. Summer is just to short up their, Grace
>>> and my bones can't take it. Plus getting sick with a cold. But Grace
>>> want's so purchase a small house or condo up their for the summer so we
>>> would miss the real hot months down here. It would only be for 4 to 5
>>> months. That way we could visit with our grand kids and our kids.
>>>
>>> I can remember when I first found out that I had CML, it was to weeks
>>> before xmas 1998. I asked the doctor at that time how much time I had and
>>> she said between 1 1/2 to 2 years. She put me on hydra then she sent me to
>>> Northwestern to see doctor Tallman and he put me in a study with interferon
>>> which almost killed me it was that bad. They stopped it after 3 months
>>> because I told him I couldn't take be that sick anymore. So they stopped
>>> the study early..I wanted to die, a short time he called me to put me in
>>> another study called STI571. Their was only 8 of us and I was the only one
>>> from Indiana plus the oldest of the 7. The study had 200 people from the
>>> US and this was the only country using STI571. And here I am after 15
>>> years still driving everyone crazy. It's funny how things turn out, I call
>>> it faith.
>>>
>>> You just got to hang in their things will get better it won't happen over
>>> night.
>>>
>>> greenie
>>>
>>>
>>>
>>>
>>>
>>> In a message dated 2/3/2015 6:03:14 P.M. Eastern Standard Time,
>>> [email protected] writes:
>>>
>>> Greenie,
>>>
>>> It's snowing again here in Chicago land..hopefully only a couple of
>>> inches..to add to the 20 plus already on the ground. I have been down with
>>> a bad cold this week...but I watched my neighbors son--- 23 year
>>> old..trying to dig out people- including me! .snow drifts were waist
>>> high! It's crazy...and now..it also got very cold...below zero wind chills
>>> last night..so lots of ice...ah winter....
>>>
>>> I was dreaming last night about the causeway between Fort Myers and
>>> Sanibel...watching the Osprey soar, seeing dolphin in the water...the
>>> pelicans sitting on wood stumps along the water...snowy egrets..and then I
>>> woke up!!! Must get back there soon one day...maybe at the end of this
>>> year...hope to meet you when I do.
>>>
>>> Will look to hear from you about your test results tomorrow.
>>>
>>> Take care, Beth
>>>
>>> -----Original Message-----
>>> From: Myvety2k via CMLHope <[email protected]>
>>> To: cmlhope <[email protected]>
>>> Sent: Tue, Feb 3, 2015 5:57 am
>>> Subject: Re: [CMLHope] Ponatinib
>>>
>>> Hi Beth, I received a call from my son Derek about the snow he lives in
>>> North Chicago. I hope I never have to move back north, can't handle the
>>> cold and snow.
>>>
>>> greenie
>>>
>>> In a message dated 2/2/2015 10:42:17 P.M. Eastern Standard Time,
>>> [email protected] writes:
>>> Dear Skip and Jeanie, Thinking of you both as you navigate new terrains.
>>> Hope the ponatinib works soon Jeanie and sorry you are struggling Skip. Do
>>> let us know if you what you decide regarding ponatinib. I think about it
>>> also. ...
>>>
>>> Greenie, hope you and your wife are feeling much better.
>>>
>>> Snow here in Chicago. 21 inches, drifts up to my waist when I opened my
>>> front door this morning. Now work today..have a cold so it was a good day
>>> to bunker down here.
>>>
>>> Blessings and love to all. Beth
>>>
>>>
>>> -----Original Message-----
>>> From: Myvety2k via CMLHope <[email protected]>
>>> To: cmlhope <[email protected]>
>>> Sent: Mon, Feb 2, 2015 3:45 pm
>>> Subject: Re: [CMLHope] Ponatinib
>>>
>>> Jeanie, it's a good thing we don't get snow or ice here in Florida because
>>> the way these people drive here the insurances companies would go out of
>>> business in one day. They can't drive here when the roads are dry.
>>>
>>> greenie
>>>
>>> In a message dated 2/2/2015 4:11:00 P.M. Eastern Standard Time,
>>> [email protected] writes:
>>> Thanks Skip-I've never had blood counts that low--always battling high
>>> ones.
>>> Wow! That storm sounds neat!
>>> We never get sleet and snow in Florida. I saw a sleet and snow storm in
>>> my visit to Switzerland. My kids loved it and were playing in it. I
>>> wasn't that brave--I went inside hehe.
>>> I hope you get your platelets soon.
>>>
>>> Prayers & Blessings Jeanie 18's
>>>
>>> On Feb 2, 2015, at 2:30 PM, "'Skip Duffie' via CMLHope"
>>> <[email protected]> wrote:
>>>
>>>> I am so sorry you counts vary so much mine have been doing that now for a
>>>> few years, Fri my HGB was 79.. my wbc was 1.5, .. plts was 17 .. neut
>>>> 0.3... ANC 0.279 normally I would get somePLTS tomorrow but we have
>>>> another big storm going to hit tonight and will have freezing rain in
>>>> morning and all the snow will turn to ice.. so we will hold off until Wed.
>>>> I am sorry for not posting much but I find using the computer very makes
>>>> me very tired lately. still thinking about Ponatinib, this is my fourth
>>>> year without anything except blood and platelet infusions
>>>> Skip Duffie
>>>>
>>>>
>>>> My brother lives in Naples, I live in South Fort Myers min. from the
>>>> beach. The weather will be Mon. 78, Tues 72, Wed 73, Thur 72, Fri 69 and
>>>> Sat 68. Below normal should be in the low 80's BUT better then SNOW>
>>>>
>>>> Greenie
>>>>
>>>> In a message dated 1/31/2015 11:39:12 P.M. Eastern Standard Time,
>>>> [email protected] writes:
>>>> Hi I am OK I had my counts done last Wednesday and my platelets were 35
>>>> and white blood cells 2.8 and neutrofils were 1.5. Hemoglobin 135. I am
>>>> still off the drug and have another check this coming Wednesday. I will go
>>>> back on the drug then and probably at 2 or three a week. My wife and I
>>>> will be coming to Naples Florida to visit friends for a week or so. I hope
>>>> it will be warm. Have your counts come down ?
>>>>
>>>> Sent from my iPad
>>>>
>>>> > On Jan 31, 2015, at 3:04 PM, 'Icandoallttc' via CMLHope
>>>> > <[email protected]> wrote:
>>>> >
>>>> > Hi John
>>>> > I go to Moffitt cancer center. How are you?
>>>> >
>>>> > Prayers & Blessings Jeanie 18's
>>>> >
>>>> >> On Jan 31, 2015, at 10:47 AM, John Barrons <[email protected]> wrote:
>>>> >>
>>>> >> Hi Jeanie: Where are getting treated? John
>>>> >>
>>>> >> Sent from my iPad
>>>> >>
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