Keep on going Jeanie. 18's,
Marty On Fri, Feb 6, 2015 at 10:03 AM, 'Icandoallttc' via CMLHope < [email protected]> wrote: > Good morning everyone > My blood results are in and my platelets came down a little--1050 > million--WBC still at 14--still fighting. > > Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠] > > On Feb 4, 2015, at 4:35 PM, bkbarney via CMLHope <[email protected]> > wrote: > > > Good you have a few options to work with...Hopefully this one will work > for you in a bit of time. I am championing your warrior spirit!! > > Take care, > 18's Beth > > -----Original Message----- > From: 'Icandoallttc' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Wed, Feb 4, 2015 7:07 am > Subject: Re: [CMLHope] Ponatinib > > 11 years for me--still fighting !!! 9th day on ponatinib. Sure hope it > starts working. My onc says it's my last choice but there is one more tki I > haven't tried--bositinib--not sure if spelling. > Thanks for the uplift. > > Prayers & Blessings Jeanie 18's > > On Feb 4, 2015, at 12:56 AM, bkbarney via CMLHope < > [email protected]> wrote: > > Thanks Greenie. You too are my inspiration.Fifteen years!!! God bless > Dr. Druker! Five years for me February 12th. I was diagnosed at 48. > > Take good care and enjoy the warmth! Beth > > > -----Original Message----- > From: Myvety2k via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Tue, Feb 3, 2015 8:31 pm > Subject: Re: [CMLHope] Ponatinib > > Beth, get out the heating pad make sure it's a big one they make > different sizes. I go fishing under the bridge going over to Sanibel > sometimes. If you do come down here we will get together that's for sure. > Just get better. My son Derek's wife Ruby, she has a massage and yoga > wellness studio 118 North Clinton St., Suite 102 in Chicago. It's called > Massage Evolved. website (massageevolved.com). They started a little > over a year ago and seem to be doing very good. He called me over the > weekend and told me about the snow. You miss Florida and I'm sorry I don't > miss North West Indiana because of that weather. Summer is just to short > up their, Grace and my bones can't take it. Plus getting sick with a > cold. But Grace want's so purchase a small house or condo up their for the > summer so we would miss the real hot months down here. It would only be > for 4 to 5 months. That way we could visit with our grand kids and our > kids. > > I can remember when I first found out that I had CML, it was to weeks > before xmas 1998. I asked the doctor at that time how much time I had and > she said between 1 1/2 to 2 years. She put me on hydra then she sent me to > Northwestern to see doctor Tallman and he put me in a study with interferon > which almost killed me it was that bad. They stopped it after 3 months > because I told him I couldn't take be that sick anymore. So they stopped > the study early..I wanted to die, a short time he called me to put me in > another study called STI571. Their was only 8 of us and I was the only one > from Indiana plus the oldest of the 7. The study had 200 people from the > US and this was the only country using STI571. And here I am after 15 > years still driving everyone crazy. It's funny how things turn out, I call > it faith. > > You just got to hang in their things will get better it won't happen over > night. > > greenie > > > > > > In a message dated 2/3/2015 6:03:14 P.M. Eastern Standard Time, > [email protected] writes: > > > Greenie, > > It's snowing again here in Chicago land..hopefully only a couple of > inches..to add to the 20 plus already on the ground. I have been down with > a bad cold this week...but I watched my neighbors son--- 23 year > old..trying to dig out people- including me! .snow drifts were waist > high! It's crazy...and now..it also got very cold...below zero wind chills > last night..so lots of ice...ah winter.... > > I was dreaming last night about the causeway between Fort Myers and > Sanibel...watching the Osprey soar, seeing dolphin in the water...the > pelicans sitting on wood stumps along the water...snowy egrets..and then I > woke up!!! Must get back there soon one day...maybe at the end of this > year...hope to meet you when I do. > > Will look to hear from you about your test results tomorrow. > > Take care, Beth > > -----Original Message----- > From: Myvety2k via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Tue, Feb 3, 2015 5:57 am > Subject: Re: [CMLHope] Ponatinib > > Hi Beth, I received a call from my son Derek about the snow he lives in > North Chicago. I hope I never have to move back north, can't handle the > cold and snow. > > greenie > > In a message dated 2/2/2015 10:42:17 P.M. Eastern Standard Time, > [email protected] writes: > > Dear Skip and Jeanie, Thinking of you both as you navigate new terrains. > Hope the ponatinib works soon Jeanie and sorry you are struggling Skip. Do > let us know if you what you decide regarding ponatinib. I think about it > also. ... > > Greenie, hope you and your wife are feeling much better. > > Snow here in Chicago. 21 inches, drifts up to my waist when I opened my > front door this morning. Now work today..have a cold so it was a good day > to bunker down here. > > Blessings and love to all. Beth > > > -----Original Message----- > From: Myvety2k via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Mon, Feb 2, 2015 3:45 pm > Subject: Re: [CMLHope] Ponatinib > > Jeanie, it's a good thing we don't get snow or ice here in Florida > because the way these people drive here the insurances companies would go > out of business in one day. They can't drive here when the roads are dry. > > greenie > > In a message dated 2/2/2015 4:11:00 P.M. Eastern Standard Time, > [email protected] writes: > > Thanks Skip-I've never had blood counts that low--always battling high > ones. > Wow! That storm sounds neat! > We never get sleet and snow in Florida. I saw a sleet and snow storm in > my visit to Switzerland. My kids loved it and were playing in it. I > wasn't that brave--I went inside hehe. > I hope you get your platelets soon. > > Prayers & Blessings Jeanie 18's > > On Feb 2, 2015, at 2:30 PM, "'Skip Duffie' via CMLHope" < > [email protected]> wrote: > > I am so sorry you counts vary so much mine have been doing that now > for a few years, Fri my HGB* was 79.. my wbc was 1.5, .. plts was 17 .. > neut 0.3... ANC 0.279 normally I would get somePLTS tomorrow but we have > another big storm going to hit tonight and will have freezing rain in > morning and all the snow will turn to ice.. so we will hold off until Wed. > I am sorry for not posting much but I find using the computer very makes me > very tired lately. still thinking about Ponatinib, this is my fourth year > without anything except blood and platelet infusions * > *Skip Duffie* > > ------------------------------ > > My brother lives in Naples, I live in South Fort Myers min. from the > beach. The weather will be Mon. 78, Tues 72, Wed 73, Thur 72, Fri 69 and > Sat 68. Below normal should be in the low 80's BUT better then SNOW> > > Greenie > > In a message dated 1/31/2015 11:39:12 P.M. Eastern Standard Time, > [email protected] writes: > > Hi I am OK I had my counts done last Wednesday and my platelets were 35 > and white blood cells 2.8 and neutrofils were 1.5. Hemoglobin 135. I am > still off the drug and have another check this coming Wednesday. I will go > back on the drug then and probably at 2 or three a week. My wife and I will > be coming to Naples Florida to visit friends for a week or so. I hope it > will be warm. Have your counts come down ? > > Sent from my iPad > > > On Jan 31, 2015, at 3:04 PM, 'Icandoallttc' via CMLHope < > [email protected]> wrote: > > > > Hi John > > I go to Moffitt cancer center. How are you? > > > > Prayers & Blessings Jeanie 18's > > > >> On Jan 31, 2015, at 10:47 AM, John Barrons <[email protected]> wrote: > >> > >> Hi Jeanie: Where are getting treated? John > >> > >> Sent from my iPad > >> > >> -- > >> -- > >> [CMLHope] > >> A support group of http://cmlhope.com > >> ------------------------------------------------- > >> > >> You received this message because you are subscribed to the Google > Groups "CMLHope" group. > >> To post to this group, send email to [email protected] > >> To unsubscribe from this group, send email to > [email protected] > >> For more options, visit this group at > http://groups.google.com/group/CMLHope > >> --- > >> You received this message because you are subscribed to the Google > Groups "CMLHope" group. > >> To unsubscribe from this group and stop receiving emails from it, send > an email to [email protected]. > >> For more options, visit https://groups.google.com/d/optout. > > > > -- > > -- > > [CMLHope] > > A support group of http://cmlhope.com > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google > Groups "CMLHope" group. > > 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