Prayers have and will continued for Wayne. Richard H. On Saturday, February 14, 2015 at 8:36:08 PM UTC-6, grammie wrote:
> Jeanie and all, > Yes, they did take tissue samples during the endoscopy & colonoscopy, but > the blood was found BEFORE those procedures. That's why he had the > procedures. > Wayne was taken off Sprycel 5 months ago because of pleural effusion. For > 3 months his PCRU held, but by 6 months it went up to 9.36. Dr Talpaz has > chosen bosulif for his next TKI. He has so many other health problems > (diabetes, A-fib, COPD, high blood pressure) that it is hard to pick > another TKI. I don't know much about bosulif. Has anybody been on it? > They are giving him a small dose, 100 mg. But they had to change his > A-fib medication which has kept him in a good heart rhythm for 5 years. > His diabetes meds are questionable, but they are going to monitor > everything and see how it goes. So if possible, send a few prayers to > Illinois for Wayne and his new TKI, hoping it works and that the side > effects are not too bad. > Joyce in IL > > > On Feb 14, 2015, at 6:17 AM, 'Icandoallttc' via CMLHope wrote: > > Hi Joyce > Did they take tissue during endoscopy and colonoscopy ? > He could be bleeding from that. > That's the problem. They just don't listen. > Keep talking to them. > Have you considered ponatinib? > Does he have heart problems? > So far so good for me. > This is my 19th day on ponatinib. He could have developed a mutant for > sprycel by now. That's what happened to me. Keep on fighting. > > Prayers & Blessings Jeanie 18's 🐠🐠 > > On Feb 14, 2015, at 1:36 AM, Joyce Mesnarich <[email protected] <javascript:>> > wrote: > > Two years ago my husband had to have 2 pints of blood because of low > hemoglobin. He seems to be heading that way again. They have found blood > in his stool, but could not find any cause for it, following an endoscope > of the esophagus and a colonoscopy. He also takes warfarin (blood thinner) > for a heart condition (A-fib). I am thinking that may be a factor, but no > one wants to talk about that. He has been off of Sprycel for 5 months due > to pleural effusion, but his counts continue to worsen. Go figure!! > Joyce in IL > > > On Feb 13, 2015, at 7:06 AM, 'Icandoallttc' via CMLHope wrote: > > My hemoglobin went to under 8 and I had to have transfusions. I think if > the onc I had at the time would have taken me off meds my blood would have > recovered. I was on Tasigna at the time. I take iron and also try to eat > iron rich foods. > > Prayers & Blessings Jeanie 18's 🐠🐠 > > On Feb 13, 2015, at 12:48 AM, Joyce Mesnarich <[email protected] > <javascript:>> wrote: > > Jeanie, > You have made my day!! So glad to see your numbers. Does this lower > hemoglobin seem to be a fact of life for CMLers? My husband's hemoglobin > also is low and he is told to take iron pills (Yuck). Keep on Keepin' on. > Joyce in IL > > On Feb 12, 2015, at 2:32 PM, 'Icandoallttc' via CMLHope wrote: > > Platelets down to under 400 and WBC were 7: that is a miracle. > From over a million to almost normal. The meds kicked in. Now worried > they might go to low. Hehe. Hemoglobin went down to 12.8 after holding at > 13. Need to ear some iron foods. > Thanks for prayers. > > Prayers & Blessings Jeanie 18's 🐠🐠 > > On Feb 12, 2015, at 10:57 AM, Suzieq <[email protected] <javascript:>> > wrote: > > Holly: I am so glad to meet someone who also has Dr. Cashen as their > doctor. I love Dr. Amanda Cashen and her nurse practitioner, Holly. As > far as their testing goes, I am assuming that they are going to do all of > it there from now on. I am glad that they don't have to overnight the > blood any longer, but I feel I need someone to explain their testing to > me. These numbers were so different than what I was use to seeing before > when I tested positive. Then, it was always in the thousandths from the > other place......this was 0.02%. I think that's what upset me so much, > the not understanding. And, I didn't have anyone to explain it to me. > Someone (Beth) here asked me if it was on the "International Scale"......I > don't know. I am not at home right now, (visiting my mom in Florida), but > I will check when I get home, if I can remember. Thank you all for your > kind words. I'm in a much better place mentally & emotionally today than > I was after opening those results. ***smile*** God reminded me by bringing > that old McKamey song, "The God on the mountain, is still God in the > valley" that night while I was feeling sorry for myself and doing laundry. > LOL!! > > Thank you all, > > Suzieq > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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