Hi. Susan unfortunately i had a stroke. getting better.
18's Marty On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope < [email protected]> wrote: > Pete, > When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is > GREAT!!! > > 18'S, > Susan F. Zimmerman > > > -----Original Message----- > From: Pete Pabon <[email protected]> > To: cmlhope <[email protected]> > Sent: Mon, Jun 15, 2015 12:36 am > Subject: RE: [CMLHope] Platelets > > *Jeanie,who do you see at Moffitt?* > > > > ------------------------------ > Date: Sun, 14 Jun 2015 20:23:18 -0700 > From: [email protected] > To: [email protected] > Subject: Re: [CMLHope] Platelets > > I do understand Skip. I have a sister that has been anemic all her > life, and she is doing fine at 5. I have been having problems every time I > get close 7.9. Just again shows how we each find our spot that works for > us. > > Richard H. > > On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: > > > I have had very low platelets and ANC and RBC and plus some others plus > high Ferritin counts over 7000 most weeks I have critical platelets and > white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 > log reduction. I fell fine been doing this for 37 years I tell you this as > I want all to know Low counts should looked but not to spoil your day > Zevie was astounded when I send him on of my blood reports with 1.0 white > 88 RBC 0zero platelets ANC of 0.20 > hooe this helps > Skip Dx 1977 > Sent from Yahoo Mail on Android > <https://overview.mail.yahoo.com/mobile/?.src=Android> > ------------------------------ > *From*:"'Icandoallttc' via CMLHope" < [email protected]> > *Date*:Tue, May 19, 2015 at 9:01 AM > *Subject*:Re: [CMLHope] Platelets > > I also have problems with platelets and WBC. They go way too high. > Only on Tasigna did they drop too Lowe. Go figure. We are all unique in > how we respond to the tkis. > Moffitt tomorrow. I am hoping for good results. > 5 months on ponatinib. > > Prayers & Blessings Jeanie [image: Fish] [image: Fish]18,s > Dx 1/2004 > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > > On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan < [email protected]> > wrote: > > I have problems with platelet count. Diagnosed in 2012 Started with > Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started > with 140mg per day and now taking 50mg per day. One moth of Sprycel > medication and two months rest for platelet recovery. This is how current > medication is going on. I take papaya leaf tea everyday to improve > platelets. > > On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS <[email protected]> > wrote: > > Does anyone have problems maintaining their platelet level? > Mine fall down to almost ZERO, which is a dangerous place to be. I am > covered with big purple bruises and petechiae and look like I have been in > a bar fight. Even a light scratch on my skin brings the blood to the > surface. It is called Thrombocytopenia. My red cells also plummet and I had > 6 blood transfusions last week. > My confidence waivers a little as it seems they don't really know what to > do about me. I have lots of complications. More specialists on the horizon, > but every step forward is followed by 3 steps back. I am on massive > prednisone for the moment. > Can anyone share info on this? > Angie in Canada.... > Gleevec pioneer since 2001 > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------ ------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------ ------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
