Hi Marcie, Your talking to a person that used to live on Epogen as well as Procrit. Here is a list of "side effects" see the list below However i never experienced any one of them.
Please let me explain why i had to use them. Twenty years ago i had CML. At that time there were no TKI's of any type and that was other then Alpha Interferon the only way i could survive, and it was an experimental procedure with some terrible side effects. Most people at the time would really suffer. The only other treatment was a bone marrow transplant which i had to go through. Now for about twenty five years later my kidneys failed and i had to go onto dialysis. Now here comes the Procrit and Epogen injections. So when your Kidney fail then your body ceases to make a hormone that goes to your bone marrow so the red cells lacking this hormone can't produce the proper amount of red cells and you become anemic. When ever your red cell count falls to around 10 or less you will need Epogen or Procrit and in the mean time you will experience lack of energy and tiredness. Once you get either one of these drugs it usually takes about a week or so for you to notice that you have regained your energy. Now i am not saying that your kidneys are failing because there are also many other things that can cause anemia. Please remember that i am not a doctor bur someone that has already gone this. I would strongly recommend that you should at least give a shot. The injection does not even hurt. Now here is the possible "side effects" but as i first mentioned i did not have any of them just more energy a week later. Hey trust me, it's much better then getting a blood transfusion. Also i never knew anyone that suffered from vomiting. Epogen (epoetin alfa) is a man-made form of a protein that helps your body produce red blood cells <http://www.rxlist.com/script/main/art.asp?articlekey=5260> used to treat anemia <http://www.rxlist.com/script/main/art.asp?articlekey=15491> (a lack of red blood cells in the body). Common side effects of Epogen include: - headache, - body aches, - diarrhea, - cold symptoms (stuffy nose <http://www.rxlist.com/script/main/art.asp?articlekey=97621>, sneezing <http://www.rxlist.com/sneezing/symptoms.htm>, sore throat <http://www.rxlist.com/script/main/art.asp?articlekey=40399>, cough), - joint pain <http://www.rxlist.com/joint_pain/symptoms.htm>, - bone pain, - muscle pain <http://www.rxlist.com/muscle_pain_myalgia/symptoms.htm> or spasms, - dizziness, - depression, - weight loss, - sleep problems (insomnia), - nausea, - vomiting <http://www.rxlist.com/vomiting/symptoms.htm>, - trouble swallowing, or - injection site reactions (pain, tenderness, or irritation). Epogen may sometimes cause or worsen high blood pressure <http://www.rxlist.com/high_blood_pressure_hypertension_medications/drugs-condition.htm>, especially in patients with long-term kidney failure <http://www.rxlist.com/kidney_failure/article.htm>. Rarely, Epogen may suddenly stop working well after a period of time because your body may make antibodies that make it work less well, and a very serious anemia can result. Tell your doctor if symptoms of anemia return (such as increased tiredness, low energy, pale skin <http://www.rxlist.com/pale_skin/symptoms.htm> color, shortness of breath). Dosing of Epogen depends on the patient's condition and body weight. Other drugs may interact with Epogen. Tell your doctor all prescription and over-the-counter medications and supplements you use. During pregnancy, Epogen should be used only when prescribed. In some women of child-bearing age, menstrual periods have resumed with Epogen treatment. Therefore, it may be possible to become pregnant while using this medication. Discuss the need for birth control with your doctor. It is unknown if this drug passes into breast milk. Consult your doctor before breastfeeding. I hope that i made you understand some things about this, and if you need anymore information just ask me. Good luck to you🌷 18's, Marty On Tue, Sep 5, 2017 at 4:47 PM, 'Marcie Goodman' via CMLHope < [email protected]> wrote: > Does anyone receive erythropoietin injections such as Procrit to combat > decreasing red cells? If so, any side effects and how often do you need the > injections? > > My red cells keep bottoming out and erythropoietin has been recommended > with caution. I have some concerns about the risks, although I feel > confident in my doctor and the outcome. > > Any feedback is most appreciated > > Marcie > Baltimore > > Sent from my iPhone > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
