Marty, Thanks so very much, my friend. I have some serious complications that could put me at huge risk with injections but I'm so glad to hear how well you did. If anyone knows complications I think it is you! And how are you doing? I haven't kept up too much with our group but I know you've had many challenges. I love your positive spirit and I thank you so much for reminding me to keep 18s always and all ways at the forefront!
Marcie Sent from my iPad > On Sep 5, 2017, at 9:15 PM, Marty Gartenberg <[email protected]> wrote: > > Hi Marcie, > > Your talking to a person that used to live on Epogen as well as Procrit. > Here is a list of "side effects" see the list below However i never > experienced any one of them. > > Please let me explain why i had to use them. > Twenty years ago i had CML. At that time there were no TKI's of any type and > that was other then Alpha Interferon the only way i could survive, and it was > an experimental procedure with some terrible side effects. Most people at the > time would really suffer. The only other treatment was a bone marrow > transplant which i had to go through. > > Now for about twenty five years later my kidneys failed and i had to go onto > dialysis. Now here comes the Procrit and Epogen injections. So when your > Kidney fail then your body ceases to make a hormone that goes to your bone > marrow so the red cells lacking this hormone can't produce the proper amount > of red cells and you become anemic. When ever your red cell count falls to > around 10 or less you will need Epogen or Procrit and in the mean time you > will experience lack of energy and tiredness. Once you get either one of > these drugs it usually takes about a week or so for you to notice that you > have regained your energy. > > Now i am not saying that your kidneys are failing because there are also many > other things that can cause anemia. > > Please remember that i am not a doctor bur someone that has already gone > this. I would strongly recommend that you should at least give a shot. The > injection does not even hurt. > > Now here is the possible "side effects" but as i first mentioned i did not > have any of them just more energy a week later. Hey trust me, it's much > better then getting a blood transfusion. Also i never knew anyone that > suffered from vomiting. > > > > Epogen (epoetin alfa) is a man-made form of a protein that helps your body > produce red blood cells used to treat anemia (a lack of red blood cells in > the body). Common side effects of Epogen include: > > headache, > body aches, > diarrhea, > cold symptoms (stuffy nose, sneezing, sore throat, cough), > joint pain, > bone pain, > muscle pain or spasms, > dizziness, > depression, > weight loss, > sleep problems (insomnia), > nausea, > vomiting, > trouble swallowing, or > injection site reactions (pain, tenderness, or irritation). > Epogen may sometimes cause or worsen high blood pressure, especially in > patients with long-term kidney failure. Rarely, Epogen may suddenly stop > working well after a period of time because your body may make antibodies > that make it work less well, and a very serious anemia can result. Tell your > doctor if symptoms of anemia return (such as increased tiredness, low energy, > pale skin color, shortness of breath). > > Dosing of Epogen depends on the patient's condition and body weight. Other > drugs may interact with Epogen. Tell your doctor all prescription and > over-the-counter medications and supplements you use. During pregnancy, > Epogen should be used only when prescribed. In some women of child-bearing > age, menstrual periods have resumed with Epogen treatment. Therefore, it may > be possible to become pregnant while using this medication. Discuss the need > for birth control with your doctor. It is unknown if this drug passes into > breast milk. Consult your doctor before breastfeeding. > > I hope that i made you understand some things about this, and if you need > anymore information just ask me. > > Good luck to you🌷 > > 18's, > > Marty > > >> On Tue, Sep 5, 2017 at 4:47 PM, 'Marcie Goodman' via CMLHope >> <[email protected]> wrote: >> Does anyone receive erythropoietin injections such as Procrit to combat >> decreasing red cells? If so, any side effects and how often do you need the >> injections? >> >> My red cells keep bottoming out and erythropoietin has been recommended with >> caution. I have some concerns about the risks, although I feel confident in >> my doctor and the outcome. >> >> Any feedback is most appreciated >> >> Marcie >> Baltimore >> >> Sent from my iPhone >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
