Dear Marcie, Yes i had and still have some major challenges but so have many others for that matter and guess what? *We *are still here and alive. I have an obligation to help others going through this, and it was a promise that i made to GOD almost 28 years ago while i was being wheeled into the radiation chamber in order to get total body radiation. I got down on my knees and said a prayer to GOD asking HIM to please look after me and if HE sees fit so that i would devote my life the helping others.
Well i kept my promise to 1,286 people, both physically and mentally and now your included, 1,287. I wrote a book called My longest journey and will never publish it but at times i send parts of it to some people who need to know. There is no "fanfare" here because this is what i am obligated to do. If you would like for me to contact you or you to me then my email address is [email protected]. I would still urge you to sit down with your doctor and discuss with him or her about Procrit and or Epogen, and if necessary get a second opinion. Probably a very good source would be Dr. Brian Drunker or Dr. Moshie Talpaz. Keep 18's in your life. Marty On Tue, Sep 5, 2017 at 9:53 PM, 'Marcie Goodman' via CMLHope < [email protected]> wrote: > Marty, > > Thanks so very much, my friend. I have some serious complications that > could put me at huge risk with injections but I'm so glad to hear how well > you did. If anyone knows complications I think it is you! And how are you > doing? I haven't kept up too much with our group but I know you've had many > challenges. I love your positive spirit and I thank you so much for > reminding me to keep 18s always and all ways at the forefront! > > Marcie > > > > Sent from my iPad > > On Sep 5, 2017, at 9:15 PM, Marty Gartenberg <[email protected]> wrote: > > Hi Marcie, > > Your talking to a person that used to live on Epogen as well as Procrit. > Here is a list of "side effects" see the list below However i never > experienced any one of them. > > Please let me explain why i had to use them. > Twenty years ago i had CML. At that time there were no TKI's of any type > and that was other then Alpha Interferon the only way i could survive, and > it was an experimental procedure with some terrible side effects. Most > people at the time would really suffer. The only other treatment was a bone > marrow transplant which i had to go through. > > Now for about twenty five years later my kidneys failed and i had to go > onto dialysis. Now here comes the Procrit and Epogen injections. So when > your Kidney fail then your body ceases to make a hormone that goes to your > bone marrow so the red cells lacking this hormone can't produce the proper > amount of red cells and you become anemic. When ever your red cell count > falls to around 10 or less you will need Epogen or Procrit and in the mean > time you will experience lack of energy and tiredness. Once you get either > one of these drugs it usually takes about a week or so for you to notice > that you have regained your energy. > > Now i am not saying that your kidneys are failing because there are also > many other things that can cause anemia. > > Please remember that i am not a doctor bur someone that has already gone > this. I would strongly recommend that you should at least give a shot. The > injection does not even hurt. > > Now here is the possible "side effects" but as i first mentioned i did not > have any of them just more energy a week later. Hey trust me, it's much > better then getting a blood transfusion. Also i never knew anyone that > suffered from vomiting. > > > > Epogen (epoetin alfa) is a man-made form of a protein that helps your body > produce red blood cells > <http://www.rxlist.com/script/main/art.asp?articlekey=5260> used to treat > anemia <http://www.rxlist.com/script/main/art.asp?articlekey=15491> (a > lack of red blood cells in the body). Common side effects of Epogen include: > > - headache, > - body aches, > - diarrhea, > - cold symptoms (stuffy nose > <http://www.rxlist.com/script/main/art.asp?articlekey=97621>, sneezing > <http://www.rxlist.com/sneezing/symptoms.htm>, sore throat > <http://www.rxlist.com/script/main/art.asp?articlekey=40399>, cough), > - joint pain <http://www.rxlist.com/joint_pain/symptoms.htm>, > - bone pain, > - muscle pain <http://www.rxlist.com/muscle_pain_myalgia/symptoms.htm> or > spasms, > - dizziness, > - depression, > - weight loss, > - sleep problems (insomnia), > - nausea, > - vomiting <http://www.rxlist.com/vomiting/symptoms.htm>, > - trouble swallowing, or > - injection site reactions (pain, tenderness, or irritation). > > Epogen may sometimes cause or worsen high blood pressure > <http://www.rxlist.com/high_blood_pressure_hypertension_medications/drugs-condition.htm>, > especially in patients with long-term kidney failure > <http://www.rxlist.com/kidney_failure/article.htm>. Rarely, Epogen may > suddenly stop working well after a period of time because your body may > make antibodies that make it work less well, and a very serious anemia can > result. Tell your doctor if symptoms of anemia return (such as increased > tiredness, low energy, pale skin > <http://www.rxlist.com/pale_skin/symptoms.htm> color, shortness of > breath). > > Dosing of Epogen depends on the patient's condition and body weight. Other > drugs may interact with Epogen. Tell your doctor all prescription and > over-the-counter medications and supplements you use. During pregnancy, > Epogen should be used only when prescribed. In some women of child-bearing > age, menstrual periods have resumed with Epogen treatment. Therefore, it > may be possible to become pregnant while using this medication. Discuss the > need for birth control with your doctor. It is unknown if this drug passes > into breast milk. Consult your doctor before breastfeeding. > > I hope that i made you understand some things about this, and if you need > anymore information just ask me. > > Good luck to you🌷 > > 18's, > > Marty > > On Tue, Sep 5, 2017 at 4:47 PM, 'Marcie Goodman' via CMLHope < > [email protected]> wrote: > >> Does anyone receive erythropoietin injections such as Procrit to combat >> decreasing red cells? If so, any side effects and how often do you need the >> injections? >> >> My red cells keep bottoming out and erythropoietin has been recommended >> with caution. I have some concerns about the risks, although I feel >> confident in my doctor and the outcome. >> >> Any feedback is most appreciated >> >> Marcie >> Baltimore >> >> Sent from my iPhone >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group >> /CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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