I was on Gleevec for about 6 years and then it stopped working. They moved me to Sprycel and many of the side affects, just as you mentioned, of Gleevec went AWAY. It was a wonderful change. Now after 8 years on Sprycel, they are moving me to Bosulif due to water around my heart and lungs. I enter a new journey but the one on Sprycel was much, much better than Gleevec.
On Thu, Jan 25, 2018 at 11:35 AM, Jamie Tufariello <[email protected]> wrote: > > > On Saturday, August 5, 2017, Vivi <[email protected]> wrote: > >> After seventeen years on Gleevec, and considered "in remission," my >> oncologist asked me if I would like to stop taking Gleevec. >> At first glance, this sounded spectacular but then she said: >> "you'll have to come in once a month to be tested." >> After deep thought (about twenty seconds), I said, "Talk to me about this >> again in ten years." >> Has anyone else stopped taking Gleevec after years of being "in >> remission?" If so, how's it going? >> What has changed in your life? Have any of the obvious physical >> side-effects (leg cramps, blood in the whites of your eyes, swollen eyelids, >> abdominal fat) retreated or been reversed? >> I'd appreciate any information other CMLers might have. >> Best to all. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group >> /CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
