Hi Beth and all I know exactly what you mean Beth. Sometimes I just want to go back to bed and do nothing. I have found however if you make a plan of what you want to accomplish that day it helps a lot. Even write it down. Start on it even if you don’t feel like finishing it. One time I made a plan to read the Bible again all the way through. I have read it before but this was just another plan. So each day I read a little and soon I had accomplished my plan. Well not soon but I did it. Getting through Job is difficult but well worth it especially since he fought disease daily. He had boils all over his body. Can you imagine! I love the part where it got to Leviathan. My granddaughter even drew me a picture of him. Now today is walking and gardening as long as I feel like it. If I get tired or weary I just rest. I remember when I was in the hospital and they wheeled that big old blood cleansing machine in my room I was in for it. They would hook it up and I had to my still for about 4 hours while my blood ran through this machine. I thought it would never be over. It never did any good. The next day my platelets and whites were right back up. I learned from Moffitt they don’t even do that. They just give you the pills and hope for the best. This last chemo Ponatinib has been the best chemo yet with the least side effects except for hair falling out. What do you take? I developed mutants to all the other chemo Just each day at a time and make a plan. Prayers. You have helped me a lot Beth. ❤️
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On May 8, 2018, at 11:40 PM, Marty Gartenberg <[email protected]> wrote: > > Just look at what your writing... > Each and every day is another day so keep on blessing your medication because > without it then it wouldn't be another day. Don't despair because you may > feel like life is trying to give you a difficult time but then there are > other days that that will restore your faith. > > I have been there and what i found out is that i am still here and by the way > so are you. > > I have always told everyone that Leukemia is a powerful disease and so it is > BUT so is your mind... Use it! > > 18's, > > Marty > > PS why do you think that all of my posts ends up with 18's? > > Because it means LIFE. > >> On Tue, May 8, 2018 at 10:52 PM, bkbarney via CMLHope >> <[email protected]> wrote: >> Dear Marty, >> >> >> I sing praises every day....for my life and for sprycel. I even bless my >> medication in my hand before I take it each night.. my little ritual. the >> side effects of the medication coupled with the two botched surgeries have >> left me with a great deal to navigate daily. I know I am blessed. But today >> I am just very very very weary. Tomorrow is another day... >> >> Hope everyone is well and enjoying spring...one day at a time...breath in >> the flowers and enjoy!!! >> >> Love to each and every one of you...and thanks for reading.. >> >> 18's B >> >> >> >> >> -----Original Message----- >> From: 'Jeanie' via CMLHope <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Tue, May 8, 2018 2:21 pm >> Subject: Re: [CMLHope] Beth >> >> Hi Beth and great news. Are you any pain? Marty I wanted to asked you if >> you they gave you any meds for pain? Did you ever have to take anything for >> leukemia ever again? Can you walk well? >> My daughter bought me a wheel chair just in case I get to tired of walking. >> Do you walk well Beth? >> So happy you are in remission. I’m in remission too but I know from >> experience how leukemia can test it’s ugly head. >> Prayer and pills is my motto and it’s working. >> Good luck >> Jean >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center >> >> 0 CBL. ABL >> >> On May 8, 2018, at 8:40 AM, Marty Gartenberg <[email protected]> wrote: >> >> Beth, Beth, Beth, >> >> What can i say, As you mentioned you are now UN-detectable, but what you >> should have written should have more piazzas to it. Something like shouting >> it at the top of your voice on the top of a high mountain with your hands >> and arms reaching upward and stretched and extended out to HIM. >> >> Well Beth sometimes i get carried away but please scroll down. >> >> >> >> >> >> >> >> BUT NOT THIS TIME🌷 >> >> Do you know why? It took place more then 30 years ago. Once my bone marrow >> transplant was finished after being confined inside of that bubble that i >> was in about a week before i was to be finally discharged i still had to >> wait that one week and i was fixated on the clock within that bubble with >> that second hand ticking away. Tick Tock, tick tock, tick tock............ I >> waited for the seconds to tick away the whole day and night until i finally >> fell asleep, and then i was woken up again and it continued on for most of >> that never ending week. I was in there for seven months and let me tell you >> it was more then horrible but i had to do it until the final seconds that i >> was able to finally to leave there, or so i thought only to find myself back >> in there two weeks later because of a severe infection from my in chest >> Hickman catheter that put me back in there for another two weeks. >> >> Was it all over? Not until i was about to leave that plastic bubble and at >> that time i raised my hands fully extended and ripped that clock right off >> the wall and since i finally had my shoes on i STOMPED the life of that >> clock to death. >> >> However, on that original day that i was discharged from the hospital it was >> raining like cats and dogs coming out of the sky and i just stood there in >> the street and let the rain populate on my face and then i remember raising >> my hands and arms up toward HIM and it was finally over with. >> >> Oh yes i am not kidding, about a week later i received a bill in the mail >> for $25 for the clock that i put out of my misery and it was marked PAID. >> And there was a reason for that. To be continued. >> >> There is a Moral to this story... Beth all that you need to do it put your >> hands and arms up toward the sky and HE will do the rest. >> >> 18's >> >> Marty >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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