Hi Marty and all That is so interesting about your stroke. My mother had the same thing in her late 70s. She lived alone but her son lived up the street and somehow she managed to call him. His wife answered and told her hubby it was a prank call because my mother was just jabbering in the phone. He looked at her and said that’s mom. They called 911 and soon she was in the hospital. By the time I got there I learned the only thing she could do was sign her name. She had to relearn everything. I took her to speech class every week and she had a tablet she was learning to write again. It took her about a year of therapy. My grandmother also had a stroke the same way. So far my sister and I have been lucky. My older sister died from the stroke she had and I always thought the doctor didn’t treat her right. They drilled s hole in her head and I think they should have just let the brain heal. Yes Marty. Learning and doing something daily will help keep our brain going. But also if you are tired rest Beth so sorry about your botched surgery. That is why I have refused to go under the knife for my pain. I may have to eventually but right now pills and faith are keeping me going. You guys are so uplifting and I look forward to your post. Marty I get s little sad when I hear about you and Shelly and how you help each other. I lost my hubby 20 years ago due to diabetes and heart failure. I was his caregiver and we had been childhood sweethearts. It was hard to let go. More later—— Love Jean
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On May 10, 2018, at 11:52 PM, Marty Gartenberg <[email protected]> wrote: > > Hi Beth, > > Believe me once you put your mind to it there isn't anything that you can't > do. All that you have to do is to try it. Yes at first you may fail but once > you get it into your head you will thieve. > It is a matter of will. > A story for you: Several years ago right after my kidney transplant my wife > and i went furniture shopping when i suddenly felt dizzy and clasped to the > floor, i tried to get up but i just managed to crawl on the floor. Shelly was > really trying to help me to a seat and the manager came over and told us that > he just called 911. Within less then ten minutes i was in an ambulance on my > way to the hospital. When one of the paramedics asked me how i was feeling i > didn't know what he was saying, it was like someone was mumbling to me. Once > they got me to the hospital they seemed to be moving there mouths but all > that i heard were these funny sounds coming out of their mouths. When i came > out of my coma i couldn't understand English. In my mind i was trying to ask > for a glass of water but didn't know how to say it > > It was very frustrating and i knew in my mind that i could talk but not > anything with English but i did remember that i was still able to speak and > understand five different foreign languages and the Morse Code because ever > since i was a young man i was a ham radio operator, but how could i try to > convey it to anyone. I was in bed and badly needed some water. So i started > yelling in different languages and tapping on the table with my fingers in > Morse Code but only my right hand would work, until one of the nurses > understood what i was asking for in Hungarian one of the languages that my > parents taught me when i was a young child. From that day on while i was > still in the hospital there was always a pitcher of cold water on my table. > > It took me over a year to teach myself how to learn English again, and i did > it all by myself. An usual thing happened to me when i went to see my > ophthalmologist because he was checking for any symptom that the stroke may > have caused to my eyes, but he found nothing thank GOD. I then mentioned to > him what had happened to me when i could not speak > English This is what he told me. He has another patient that also had a > similar stroke in the same region of the brain that i had mine in. He then > tells me that this man suddenly started speaking words with a heavy French > accent but not French but English with a heavy French accent. This lasted for > about almost two years and he is back to normal. Amazing what can happen. > > So this is another example of what your mind can do. All you have to do it to > try and help yourself. > > To my understanding the human brain uses about 10% of it's capacity, more or > less. If you know to the contrary please let me know. > > 18's, > > Marty > >> On Thu, May 10, 2018 at 9:59 PM, bkbarney via CMLHope >> <[email protected]> wrote: >> Just beautiful Marty!!! I love the stained glass... >> >> thanks for sharing!! >> >> >> >> -----Original Message----- >> From: Marty Gartenberg <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Wed, May 9, 2018 8:40 am >> Subject: Re: [CMLHope] Beth >> >> >> >> On Wed, May 9, 2018 at 9:38 AM, Marty Gartenberg <[email protected]> wrote: >> Beth, Jeanie your learning from eachother and i am also learning from the >> both of you as you are learning from me. This is what it is. I always say >> that life is a learning process and well, it is. You must learn something >> new every day of your life. >> >> Now i would like to send you some pictures that i took of some of my >> projects that me and my wife did together mostly when i wasn't feeling very >> well, but i still did it. Shelly did the cutting for the most part and i did >> the grinding and fitting and the soldering, sometimes switching off but we >> did it together. And it made both of us feel that much better. >> >> Everything that you may see in these three pictures are things that we >> personally accomplished by ourselves including the crown moldings as well as >> the moldings on the ceiling. Both of us never said that maybe we should >> stop, but sat down and rested for a while and had lunch or watched TV and >> then got back to "business". Sure it sometimes taxed me out but i still >> continued on for weeks at a time or even months. >> >> There is a point to all of this, just get your priorities together and there >> is nothing that you can't accomplish. >> >> 18's, >> >> Marty >> >> On Wed, May 9, 2018 at 6:40 AM, 'Jeanie' via CMLHope >> <[email protected]> wrote: >> Hi Beth and all >> I know exactly what you mean Beth. Sometimes I just want to go back to bed >> and do nothing. >> I have found however if you make a plan of what you want to accomplish that >> day it helps a lot. Even write it down. Start on it even if you don’t feel >> like finishing it. >> One time I made a plan to read the Bible again all the way through. I have >> read it before but this was just another plan. So each day I read a little >> and soon I had accomplished my plan. Well not soon but I did it. >> Getting through Job is difficult but well worth it especially since he >> fought disease daily. He had boils all over his body. Can you imagine! >> I love the part where it got to Leviathan. My granddaughter even drew me a >> picture of him. >> Now today is walking and gardening as long as I feel like it. If I get tired >> or weary I just rest. >> I remember when I was in the hospital and they wheeled that big old blood >> cleansing machine in my room I was in for it. They would hook it up and I >> had to my still for about 4 hours while my blood ran through this machine. I >> thought it would never be over. It never did any good. The next day my >> platelets and whites were right back up. I learned from Moffitt they don’t >> even do that. They just give you the pills and hope for the best. >> This last chemo Ponatinib has been the best chemo yet with the least side >> effects except for hair falling out. >> What do you take? I developed mutants to all the other chemo >> Just each day at a time and make a plan. Prayers. >> You have helped me a lot Beth. >> ❤️ >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center >> >> 0 CBL. ABL >> >> On May 8, 2018, at 11:40 PM, Marty Gartenberg <[email protected]> wrote: >> >> Just look at what your writing... >> Each and every day is another day so keep on blessing your medication >> because without it then it wouldn't be another day. Don't despair because >> you may feel like life is trying to give you a difficult time but then there >> are other days that that will restore your faith. >> >> I have been there and what i found out is that i am still here and by the >> way so are you. >> >> I have always told everyone that Leukemia is a powerful disease and so it is >> BUT so is your mind... Use it! >> >> 18's, >> >> Marty >> >> PS why do you think that all of my posts ends up with 18's? >> >> Because it means LIFE. >> >> On Tue, May 8, 2018 at 10:52 PM, bkbarney via CMLHope >> <[email protected]> wrote: >> Dear Marty, >> >> >> I sing praises every day....for my life and for sprycel. I even bless my >> medication in my hand before I take it each night.. my little ritual. the >> side effects of the medication coupled with the two botched surgeries have >> left me with a great deal to navigate daily. I know I am blessed. But today >> I am just very very very weary. Tomorrow is another day... >> >> Hope everyone is well and enjoying spring...one day at a time...breath in >> the flowers and enjoy!!! >> >> Love to each and every one of you...and thanks for reading.. >> >> 18's B >> >> >> >> >> -----Original Message----- >> From: 'Jeanie' via CMLHope <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Tue, May 8, 2018 2:21 pm >> Subject: Re: [CMLHope] Beth >> >> Hi Beth and great news. Are you any pain? Marty I wanted to asked you if >> you they gave you any meds for pain? Did you ever have to take anything for >> leukemia ever again? Can you walk well? >> My daughter bought me a wheel chair just in case I get to tired of walking. >> Do you walk well Beth? >> So happy you are in remission. I’m in remission too but I know from >> experience how leukemia can test it’s ugly head. >> Prayer and pills is my motto and it’s working. >> Good luck >> Jean >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center >> >> 0 CBL. ABL >> >> On May 8, 2018, at 8:40 AM, Marty Gartenberg <[email protected]> wrote: >> >> Beth, Beth, Beth, >> >> What can i say, As you mentioned you are now UN-detectable, but what you >> should have written should have more piazzas to it. Something like shouting >> it at the top of your voice on the top of a high mountain with your hands >> and arms reaching upward and stretched and extended out to HIM. >> >> Well Beth sometimes i get carried away but please scroll down. >> >> >> >> >> >> >> >> BUT NOT THIS TIME🌷 >> >> Do you know why? It took place more then 30 years ago. Once my bone marrow >> transplant was finished after being confined inside of that bubble that i >> was in about a week before i was to be finally discharged i still had to >> wait that one week and i was fixated on the clock within that bubble with >> that second hand ticking away. Tick Tock, tick tock, tick tock............ I >> waited for the seconds to tick away the whole day and night until i finally >> fell asleep, and then i was woken up again and it continued on for most of >> that never ending week. I was in there for seven months and let me tell you >> it was more then horrible but i had to do it until the final seconds that i >> was able to finally to leave there, or so i thought only to find myself back >> in there two weeks later because of a severe infection from my in chest >> Hickman catheter that put me back in there for another two weeks. >> >> Was it all over? Not until i was about to leave that plastic bubble and at >> that time i raised my hands fully extended and ripped that clock right off >> the wall and since i finally had my shoes on i STOMPED the life of that >> clock to death. >> >> However, on that original day that i was discharged from the hospital it was >> raining like cats and dogs coming out of the sky and i just stood there in >> the street and let the rain populate on my face and then i remember raising >> my hands and arms up toward HIM and it was finally over with. >> >> Oh yes i am not kidding, about a week later i received a bill in the mail >> for $25 for the clock that i put out of my misery and it was marked PAID. >> And there was a reason for that. To be continued. >> >> There is a Moral to this story... Beth all that you need to do it put your >> hands and arms up toward the sky and HE will do the rest. >> >> 18's >> >> Marty >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
