Good to hear from you, Greenie.
Joyce in Southern Illinois
> On Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope <[email protected]>
> wrote:
>
> That's funny that you put out a post, I was going send one also like (hello,
> is anyone out there). I don't have to now. Thanks for posting.
>
> greenie
>
>
> -----Original Message-----
> From: Joyce Mesnarich <[email protected]>
> To: cmlhope <[email protected]>
> Sent: Mon, Sep 16, 2019 3:08 pm
> Subject: Re: [CMLHope] Not getting any mail
>
> Hi Jeanie.
> I think we all have just become quiet on this site. I have received no mail
> either. My husband is the CML patient. I am his caregiver. He is presently
> taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you.
> But I, too, would be skeptical of getting meds from a place I didn’t know
> anything about.
> My husband was previously seeing Dr Talpaz in Michigan. We live in Southern
> Illinois. So it was an expensive trip and as we have gotten older we found
> it is just too much for us. We found a doctor at Siteman Cancer Center in St
> Louis (50 miles from us) and started going to him. He is elderly himself.
> The last 2 times we went we saw his PA. She seems good but certainly is not
> up to Dr Talpaz standards. We fear that his new doctor may be slipping a bit
> and they are keeping him from seeing patients. My husband is doing well as
> far as CML goes. But time is taking its toll. He has very low energy.
> Don’t know if that is the CML or the medication.
> I hope you are feeling well. I know you have had some problems in the past.
> I have been in this group since 2008. Seems most everybody is gone. Sad.
> Joyce in Southern Illinois
>
>
>> On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope
>> <[email protected] <mailto:[email protected]>> wrote:
>>
>
> Hello
> I am not receiving any mail from group. Has this group shut down.
> Anyway Igor a letter in the mail saying AcariaHealth would handle my
> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone
> else heard this. Hope everyone is great.
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> 🐠free
> Christian
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
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