Hi Susan. So sorry I sometimes just say hello to all. How are you and how are your counts. So good to hear from our special group. Love ya
My Motto: Faith and Pills With Love Jeanie š free Christian Dx 1/2004 CML Leukemia > On Sep 20, 2019, at 8:50 AM, 'educatorsusan' via CMLHope > <[email protected]> wrote: > > I guess Iām a ghost because no one said āhelloā to me. > > Susan Rosenthal > >> On Sep 20, 2019, at 7:30 AM, myvety2k via CMLHope <[email protected]> >> wrote: >> >> Hi Susan, it's always glad to hear from friends we know with CML and real >> glad your doing so well. Keep it going. >> >> greene >> >> >> -----Original Message----- >> From: 'Icandoallttc' via CMLHope <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Fri, Sep 20, 2019 2:58 am >> Subject: Re: [CMLHope] Not getting any mail >> >> ThAnks for answering everyone. I am still in remission and doing good. Did >> anyone else get a letter from Acadia health. I didnāt think anyone could >> mess with your meds unless you okayed it. >> Good health to all. >> Thanks again and bless you. >> Jeanie >> >>> On Sep 18, 2019, at 7:37 PM, rszim0702 via CMLHope >>> <[email protected]> wrote: >>> >>> I am here! Not been on as much lately. >>> Last test I was in MMR, so elated about that. >>> >>> Great to see you on here, Greenie. And of course Jeanie, thank you for >>> posting! >>> >>> Hope you and all are doing well as we all get a wee bit older. Stay strong, >>> blood buddies!!! >>> >>> Hugs, >>> Susan Zimmerman >>> >>> On Sep 16, 2019 6:27 PM, Joyce Mesnarich <[email protected]> wrote: >>> Good to hear from you, Greenie. >>> Joyce in Southern Illinois >>> >>> >>> On Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope >>> <[email protected]> wrote: >>> >>> That's funny that you put out a post, I was going send one also like >>> (hello, is anyone out there). I don't have to now. Thanks for posting. >>> >>> greenie >>> >>> >>> -----Original Message----- >>> From: Joyce Mesnarich <[email protected]> >>> To: cmlhope <[email protected]> >>> Sent: Mon, Sep 16, 2019 3:08 pm >>> Subject: Re: [CMLHope] Not getting any mail >>> >>> Hi Jeanie. >>> I think we all have just become quiet on this site. I have received no >>> mail either. My husband is the CML patient. I am his caregiver. He is >>> presently taking Bosulif. I donāt know anything about Ponatinib, so I >>> canāt help you. But I, too, would be skeptical of getting meds from a >>> place I didnāt know anything about. >>> My husband was previously seeing Dr Talpaz in Michigan. We live in >>> Southern Illinois. So it was an expensive trip and as we have gotten older >>> we found it is just too much for us. We found a doctor at Siteman Cancer >>> Center in St Louis (50 miles from us) and started going to him. He is >>> elderly himself. The last 2 times we went we saw his PA. She seems good >>> but certainly is not up to Dr Talpaz standards. We fear that his new >>> doctor may be slipping a bit and they are keeping him from seeing patients. >>> My husband is doing well as far as CML goes. But time is taking its toll. >>> He has very low energy. Donāt know if that is the CML or the medication. >>> I hope you are feeling well. I know you have had some problems in the past. >>> I have been in this group since 2008. Seems most everybody is gone. Sad. >>> Joyce in Southern Illinois >>> >>> >>> On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope >>> <[email protected]> wrote: >>> >>> Hello >>> I am not receiving any mail from group. Has this group shut down. >>> Anyway Igor a letter in the mail saying AcariaHealth would handle my >>> Ponatinib from now on. I never heard from them and think itās fraud. Anyone >>> else heard this. Hope everyone is great. >>> >>> My Motto: >>> Faith and Pills >>> With Love >>> Jeanie >>> š free >>> Christian >>> Dx 1/2004 CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib 1/ 2015 15 mg >>> New Doctor--Dr Martine Extermann >>> Moffitt Cancer center sept 2017 >>> Dr Balducci retired >>> Dr Gedia PCD >>> 0 CBL. ABL >>> July 2018 dx with thyroid disease tsh 13 >>> T4-normal t3-normal >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> To view this discussion on the web visit >>> https://groups.google.com/d/msgid/cmlhope/7D3D7A1F-0B96-4EE1-A9D0-A1679422842F%40aol.com. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- 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https://groups.google.com/d/msgid/cmlhope/51ca8887-f247-4d85-929b-d4bb100e7406%40email.android.com. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> To view this discussion on the web visit >> https://groups.google.com/d/msgid/cmlhope/8ED4F0AA-6745-4BB1-9FD6-859907B1B1C9%40aol.com. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> 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