I guess I’m a ghost because no one said “hello” to me. Susan Rosenthal
> On Sep 20, 2019, at 7:30 AM, myvety2k via CMLHope <[email protected]> > wrote: > > Hi Susan, it's always glad to hear from friends we know with CML and real > glad your doing so well. Keep it going. > > greene > > > -----Original Message----- > From: 'Icandoallttc' via CMLHope <[email protected]> > To: cmlhope <[email protected]> > Sent: Fri, Sep 20, 2019 2:58 am > Subject: Re: [CMLHope] Not getting any mail > > ThAnks for answering everyone. I am still in remission and doing good. Did > anyone else get a letter from Acadia health. I didn’t think anyone could mess > with your meds unless you okayed it. > Good health to all. > Thanks again and bless you. > Jeanie > >> On Sep 18, 2019, at 7:37 PM, rszim0702 via CMLHope >> <[email protected]> wrote: >> >> I am here! Not been on as much lately. >> Last test I was in MMR, so elated about that. >> >> Great to see you on here, Greenie. And of course Jeanie, thank you for >> posting! >> >> Hope you and all are doing well as we all get a wee bit older. Stay strong, >> blood buddies!!! >> >> Hugs, >> Susan Zimmerman >> >> On Sep 16, 2019 6:27 PM, Joyce Mesnarich <[email protected]> wrote: >> Good to hear from you, Greenie. >> Joyce in Southern Illinois >> >> >> On Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope <[email protected]> >> wrote: >> >> That's funny that you put out a post, I was going send one also like (hello, >> is anyone out there). I don't have to now. Thanks for posting. >> >> greenie >> >> >> -----Original Message----- >> From: Joyce Mesnarich <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Mon, Sep 16, 2019 3:08 pm >> Subject: Re: [CMLHope] Not getting any mail >> >> Hi Jeanie. >> I think we all have just become quiet on this site. I have received no mail >> either. My husband is the CML patient. I am his caregiver. He is >> presently taking Bosulif. I don’t know anything about Ponatinib, so I can’t >> help you. But I, too, would be skeptical of getting meds from a place I >> didn’t know anything about. >> My husband was previously seeing Dr Talpaz in Michigan. We live in Southern >> Illinois. So it was an expensive trip and as we have gotten older we found >> it is just too much for us. We found a doctor at Siteman Cancer Center in >> St Louis (50 miles from us) and started going to him. He is elderly >> himself. The last 2 times we went we saw his PA. She seems good but >> certainly is not up to Dr Talpaz standards. We fear that his new doctor may >> be slipping a bit and they are keeping him from seeing patients. My husband >> is doing well as far as CML goes. But time is taking its toll. He has very >> low energy. Don’t know if that is the CML or the medication. >> I hope you are feeling well. I know you have had some problems in the past. >> I have been in this group since 2008. Seems most everybody is gone. Sad. >> Joyce in Southern Illinois >> >> >> On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope >> <[email protected]> wrote: >> >> Hello >> I am not receiving any mail from group. Has this group shut down. >> Anyway Igor a letter in the mail saying AcariaHealth would handle my >> Ponatinib from now on. I never heard from them and think it’s fraud. Anyone >> else heard this. Hope everyone is great. >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Christian >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> To view this discussion on the web visit >> https://groups.google.com/d/msgid/cmlhope/7D3D7A1F-0B96-4EE1-A9D0-A1679422842F%40aol.com. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this 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receiving emails from it, send an >> email to [email protected]. >> To view this discussion on the web visit >> https://groups.google.com/d/msgid/cmlhope/A9C0B402-FF2F-485D-B2EA-0D6C595B2365%40htc.net. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> To view this discussion on the web visit >> https://groups.google.com/d/msgid/cmlhope/51ca8887-f247-4d85-929b-d4bb100e7406%40email.android.com. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > To view this discussion on the web visit > https://groups.google.com/d/msgid/cmlhope/8ED4F0AA-6745-4BB1-9FD6-859907B1B1C9%40aol.com. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to 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