Hi Susan, it's always glad to hear from friends we know with CML and real glad your doing so well. Keep it going. greene
-----Original Message----- From: 'Icandoallttc' via CMLHope <[email protected]> To: cmlhope <[email protected]> Sent: Fri, Sep 20, 2019 2:58 am Subject: Re: [CMLHope] Not getting any mail ThAnks for answering everyone. I am still in remission and doing good. Did anyone else get a letter from Acadia health. I didn’t think anyone could mess with your meds unless you okayed it. Good health to all. Thanks again and bless you. Jeanie On Sep 18, 2019, at 7:37 PM, rszim0702 via CMLHope <[email protected]> wrote: I am here! Not been on as much lately.Last test I was in MMR, so elated about that. Great to see you on here, Greenie. And of course Jeanie, thank you for posting! Hope you and all are doing well as we all get a wee bit older. Stay strong, blood buddies!!! Hugs,Susan Zimmerman On Sep 16, 2019 6:27 PM, Joyce Mesnarich <[email protected]> wrote: Good to hear from you, Greenie. Joyce in Southern Illinois On Sep 16, 2019, at 3:51 PM, myvety2k via CMLHope <[email protected]> wrote: That's funny that you put out a post, I was going send one also like (hello, is anyone out there). I don't have to now. Thanks for posting. greenie -----Original Message----- From: Joyce Mesnarich <[email protected]> To: cmlhope <[email protected]> Sent: Mon, Sep 16, 2019 3:08 pm Subject: Re: [CMLHope] Not getting any mail Hi Jeanie.I think we all have just become quiet on this site. I have received no mail either. My husband is the CML patient. I am his caregiver. He is presently taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. But I, too, would be skeptical of getting meds from a place I didn’t know anything about. My husband was previously seeing Dr Talpaz in Michigan. We live in Southern Illinois. So it was an expensive trip and as we have gotten older we found it is just too much for us. We found a doctor at Siteman Cancer Center in St Louis (50 miles from us) and started going to him. He is elderly himself. The last 2 times we went we saw his PA. She seems good but certainly is not up to Dr Talpaz standards. We fear that his new doctor may be slipping a bit and they are keeping him from seeing patients. My husband is doing well as far as CML goes. But time is taking its toll. He has very low energy. Don’t know if that is the CML or the medication. I hope you are feeling well. I know you have had some problems in the past. I have been in this group since 2008. Seems most everybody is gone. Sad. Joyce in Southern Illinois On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope <[email protected]> wrote: HelloI am not receiving any mail from group. Has this group shut down. Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great. My Motto:Faith and PillsWith LoveJeanie🐠freeChristian Dx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. 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To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/51ca8887-f247-4d85-929b-d4bb100e7406%40email.android.com. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/8ED4F0AA-6745-4BB1-9FD6-859907B1B1C9%40aol.com. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/1708743046.4198732.1568979041546%40mail.yahoo.com.
