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Hello---I just arrived home after attending BFing
support group. I will write more tomorrow, but one thing I would do is to
purchase the book, THE BOY WHO LOVED WINDOWS by Patricia Stacey. Her
son, Walker, presented much the same as Emma, except for that my daughter has
always been very physically vigorous, and rarely ever ill. The boy,
Walker, was VERY small for his age, and has many eating difficulties, allergies,
ect.......
Your niece can be assessed through the Dept of
Education,in the state whee they reside, I believe. Here in
Maine,Emma was assessed through Project Peds, Child Development Services.
Emma was delayed in walking (18 months old), and also
was not sociable. She did not make good eye contact. Her speech was
markedly delayed. She starting to be very irritable at around 6 months,
wanted to stay in her crib a lot, as though the outside world was too much to
handle. She seemed to be different from the start...when I thought about how my
two sons were developmentally. We noticed that Emma did a strange
leg-kicking motion with her right leg, starting at about 4 months old....a
self-stimulating motion. She also liked to smell everything. When
older, she would line things up....and also gaze at objects from different
angles......like a hairbrush would really fascinate her............
Emma attends a special Neurohealth preschool full-time,
and is making great progress! The earlier developmental delays are caught,
and therapy started, the better the outcome...the brain is more malleable the
younger you are.....
Another book is LET ME HEAR YOUR
VOICE............BUT--I would certainly purchase THE BOY WHO LOVED WINDOWS
first! In that book, the mom suspects autism from birth.
Can you tell me what makes you believe she may have
ASD?
hugs,
britt
----- Original Message -----
Sent: Tuesday, December 28, 2004 3:07
PM
Subject: [bfing] Re: Something I
found....
Hi Britt, I have never corresponded directly with you
before, but I read all of your postings and enjoy them. I suspect my
neice could have some degree of A.S.D. She is only 8.5 months old,
but she seems different to me. Can you tell me what you saw in Emma that
was different at that age? My neice is very small for her age (below the
5th percentile) and her head is porprtioned to her body, which it shouldn't
be. She is happy and seems to be "normal", but is not thriving and just
seems different than my baby of the same age. Her parents are concerned
too. Any help would be appreicated, Thanks!
Kelli
----- Original Message -----
Sent: Tuesday, December 28, 2004 9:38
AM
Subject: [bfing] Something I
found....
Hi, everyone! First off, Happy New Year to all of you! Each
& EVERY one of you are very important to me in many different
ways.......and I appreciate that more than you can imagine!
I recieved a gift certificate from a family member for the Maine Made
Shop......so, it didn't take me long to go there to spend it. I saw
something I liked right away, and knew that that was what the gift
certificate would buy....
A wooden, pink sign that said, "ALWAYS KISS ME GOODNIGHT". A sign
that will go in Emma's room, above her crib. The sign makes me happy
& sad at the same time.......at times, it has been VERY stressful &
very difficult for my husband & me to adjust to Emma's Autism
diagnosis, and to the behavior that often goes along with it...to sometimes
feel resentful, and then to feel very guilty for feeling resentful...we love
our daughter very, very much, but are often fearful of what the future holds
for her......I want everyone to love her as we do......
BUT, no matter how difficult the day has been, we ALWAYS KISS HER
GOODNIGHT, and we start the next day with a fresh outlook, and
with regenerated minds & bodies. It is not her "fault", and
it is not our "fault". I love her for her...for being her. Just
because she exists. She doesn't have a fault. I remember how being
pregnant with her represented a time of great hope and a fresh start for me.
It still does. And, I have always loved her so much that sometimes I
can't stand it......overwhelming to love someone that much. Enough of
my being sappy......
You are all the best!
Hugs from Britt & the Gang
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