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First I want to say, I do really know nothing about
this disorder other than my friend has a son with it. Please forgive my
ignorance.
well, the things that I wonder about
with my neice are...her cry is very unusual, kind of like a cat
screech. She will not cuddle. When you feed her a bottle her back
must be on your chest for her to be comfortable eating. She has tried several
different formulas and is now on a doctor prescribed formula for babies who
vomit a lot. (her mom does not bfeed) She was born with an
abnormality, a reflux, that causes her urine to back up into her kidney and
is on antibiotics indefintely to prevent bladder and kidney infections.
When you are holding her she wants to be faced out but she keeps her left arm
stiff, pushing you away. However, she does seem responsive when you smile
at her. I can get eye contact. they live in a different state so
I rarely get to see them but I didn't notice any self stimulating motions.
She is very active and crawled early, but has no signs of walking, or even
standing, as her feet don't lay flat yet. I will look into those
books...thank you so much for your time.
Kelli, mama to Becca and Clay
----- Original Message -----
Sent: Tuesday, December 28, 2004 4:23
PM
Subject: [bfing] Re: Something I
found....
Hello---I just arrived home after attending BFing
support group. I will write more tomorrow, but one thing I would do is
to purchase the book, THE BOY WHO LOVED WINDOWS by Patricia
Stacey. Her son, Walker, presented much the same as Emma, except
for that my daughter has always been very physically vigorous, and rarely ever
ill. The boy, Walker, was VERY small for his age, and has many eating
difficulties, allergies, ect.......
Your niece can be assessed through the Dept of
Education,in the state whee they reside, I believe. Here in
Maine,Emma was assessed through Project Peds, Child Development
Services.
Emma was delayed in walking (18 months old), and also
was not sociable. She did not make good eye contact. Her speech
was markedly delayed. She starting to be very irritable at around 6
months, wanted to stay in her crib a lot, as though the outside world was too
much to handle. She seemed to be different from the start...when I thought
about how my two sons were developmentally. We noticed that Emma did a
strange leg-kicking motion with her right leg, starting at about 4 months
old....a self-stimulating motion. She also liked to smell
everything. When older, she would line things up....and also gaze at
objects from different angles......like a hairbrush would really fascinate
her............
Emma attends a special Neurohealth preschool
full-time, and is making great progress! The earlier developmental
delays are caught, and therapy started, the better the outcome...the brain is
more malleable the younger you are.....
Another book is LET ME HEAR YOUR
VOICE............BUT--I would certainly purchase THE BOY WHO LOVED WINDOWS
first! In that book, the mom suspects autism from birth.
Can you tell me what makes you believe she may have
ASD?
hugs,
britt
----- Original Message -----
Sent: Tuesday, December 28, 2004 3:07
PM
Subject: [bfing] Re: Something I
found....
Hi Britt, I have never corresponded directly with
you before, but I read all of your postings and enjoy them. I suspect
my neice could have some degree of A.S.D. She is only 8.5 months
old, but she seems different to me. Can you tell me what you saw in
Emma that was different at that age? My neice is very small for her
age (below the 5th percentile) and her head is porprtioned to her body,
which it shouldn't be. She is happy and seems to be "normal", but is
not thriving and just seems different than my baby of the same age.
Her parents are concerned too. Any help would be appreicated,
Thanks!
Kelli
----- Original Message -----
Sent: Tuesday, December 28, 2004 9:38
AM
Subject: [bfing] Something I
found....
Hi, everyone! First off, Happy New Year to all of you!
Each & EVERY one of you are very important to me in many different
ways.......and I appreciate that more than you can imagine!
I recieved a gift certificate from a family member for the Maine Made
Shop......so, it didn't take me long to go there to spend it. I saw
something I liked right away, and knew that that was what the
gift certificate would buy....
A wooden, pink sign that said, "ALWAYS KISS ME GOODNIGHT". A
sign that will go in Emma's room, above her crib. The sign makes me
happy & sad at the same time.......at times, it has been VERY
stressful & very difficult for my husband & me to adjust to
Emma's Autism diagnosis, and to the behavior that often goes along with
it...to sometimes feel resentful, and then to feel very guilty for feeling
resentful...we love our daughter very, very much, but are often fearful of
what the future holds for her......I want everyone to love her as we
do......
BUT, no matter how difficult the day has been, we ALWAYS KISS HER
GOODNIGHT, and we start the next day with a fresh outlook, and
with regenerated minds & bodies. It is not her "fault", and
it is not our "fault". I love her for her...for being her. Just
because she exists. She doesn't have a fault. I remember how being
pregnant with her represented a time of great hope and a fresh start for
me. It still does. And, I have always loved her so much that
sometimes I can't stand it......overwhelming to love someone that
much. Enough of my being sappy......
You are all the best!
Hugs from Britt & the Gang
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