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Hi---Our Emma has a screech...it will pierce your
eardrums, and when she was a younger baby, she did not like physical
contact...did not like to be held, ect. Ems would not cuddle.
But, she loves to cuddle now, and she has done
fabulously with her therapies.....she will turn 3 on Feb 2nd.......
The baby boy, Walker, in the book by Patricia Stacey,,
had to eat a special formula, or he would vomit a lot.......
Hugs,
britt
----- Original Message -----
Sent: Tuesday, December 28, 2004 8:02
PM
Subject: [bfing] Re: Something I
found....
First I want to say, I do really know nothing about
this disorder other than my friend has a son with it. Please forgive my
ignorance.
well, the things that I wonder
about with my neice are...her cry is very unusual, kind of like a cat
screech. She will not cuddle. When you feed her a bottle her back
must be on your chest for her to be comfortable eating. She has tried several
different formulas and is now on a doctor prescribed formula for babies
who vomit a lot. (her mom does not bfeed) She was born with an
abnormality, a reflux, that causes her urine to back up into her kidney
and is on antibiotics indefintely to prevent bladder and kidney
infections. When you are holding her she wants to be faced out but she keeps
her left arm stiff, pushing you away. However, she does seem responsive
when you smile at her. I can get eye contact. they live in a
different state so I rarely get to see them but I didn't notice any self
stimulating motions. She is very active and crawled early, but has no
signs of walking, or even standing, as her feet don't lay flat yet. I
will look into those books...thank you so much for your time.
Kelli, mama to Becca and Clay
----- Original Message -----
Sent: Tuesday, December 28, 2004 4:23
PM
Subject: [bfing] Re: Something I
found....
Hello---I just arrived home after attending BFing
support group. I will write more tomorrow, but one thing I would do is
to purchase the book, THE BOY WHO LOVED WINDOWS by Patricia
Stacey. Her son, Walker, presented much the same as Emma, except
for that my daughter has always been very physically vigorous, and rarely
ever ill. The boy, Walker, was VERY small for his age, and has many
eating difficulties, allergies, ect.......
Your niece can be assessed through the Dept of
Education,in the state whee they reside, I believe. Here in
Maine,Emma was assessed through Project Peds, Child Development
Services.
Emma was delayed in walking (18 months old), and
also was not sociable. She did not make good eye contact. Her
speech was markedly delayed. She starting to be very irritable at
around 6 months, wanted to stay in her crib a lot, as though the outside
world was too much to handle. She seemed to be different from the
start...when I thought about how my two sons were developmentally. We
noticed that Emma did a strange leg-kicking motion with her right leg,
starting at about 4 months old....a self-stimulating motion. She also
liked to smell everything. When older, she would line things up....and
also gaze at objects from different angles......like a hairbrush would
really fascinate her............
Emma attends a special Neurohealth preschool
full-time, and is making great progress! The earlier developmental
delays are caught, and therapy started, the better the outcome...the brain
is more malleable the younger you are.....
Another book is LET ME HEAR YOUR
VOICE............BUT--I would certainly purchase THE BOY WHO LOVED WINDOWS
first! In that book, the mom suspects autism from birth.
Can you tell me what makes you believe she may have
ASD?
hugs,
britt
----- Original Message -----
Sent: Tuesday, December 28, 2004 3:07
PM
Subject: [bfing] Re: Something I
found....
Hi Britt, I have never corresponded directly with
you before, but I read all of your postings and enjoy them. I
suspect my neice could have some degree of A.S.D. She is only
8.5 months old, but she seems different to me. Can you tell me what
you saw in Emma that was different at that age? My neice is very
small for her age (below the 5th percentile) and her head is porprtioned
to her body, which it shouldn't be. She is happy and seems to be
"normal", but is not thriving and just seems different than my baby of the
same age. Her parents are concerned too. Any help would be
appreicated, Thanks!
Kelli
----- Original Message -----
Sent: Tuesday, December 28, 2004
9:38 AM
Subject: [bfing] Something I
found....
Hi, everyone! First off, Happy New Year to all of you!
Each & EVERY one of you are very important to me in many different
ways.......and I appreciate that more than you can imagine!
I recieved a gift certificate from a family member for the Maine
Made Shop......so, it didn't take me long to go there to spend it.
I saw something I liked right away, and knew that that was
what the gift certificate would buy....
A wooden, pink sign that said, "ALWAYS KISS ME GOODNIGHT". A
sign that will go in Emma's room, above her crib. The sign makes
me happy & sad at the same time.......at times, it has been VERY
stressful & very difficult for my husband & me to adjust to
Emma's Autism diagnosis, and to the behavior that often goes along with
it...to sometimes feel resentful, and then to feel very guilty for
feeling resentful...we love our daughter very, very much, but are often
fearful of what the future holds for her......I want everyone to love
her as we do......
BUT, no matter how difficult the day has been, we ALWAYS KISS HER
GOODNIGHT, and we start the next day with a fresh outlook, and
with regenerated minds & bodies. It is not her "fault",
and it is not our "fault". I love her for her...for being
her. Just because she exists. She doesn't have a fault. I
remember how being pregnant with her represented a time of great hope
and a fresh start for me. It still does. And, I have always loved
her so much that sometimes I can't stand it......overwhelming to love
someone that much. Enough of my being sappy......
You are all the best!
Hugs from Britt & the Gang
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