RE: [ozmidwifery] CF screening

[Megan & Larry]

I guess what it gives is choice, and for our own reasons will come to a different decision. To be able to test for this disease pre-conception seems a good place to start.   My husband and I decided not to have any maternal screening done, we weren't at high risk and were not going to terminate anyway. At the same time as I had bubs no. 3 a friend made a very different decision, she was older, has 2 uncles with Downs and her partner and herself did not want that for themselves. For them the tests were important. As it turned their first baby miscarried then  they had a healthy little girl, but they have chosen not have any more children . For them the anxiety was too much. We all make our own decision based on our own experiences.   Megan From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] On Behalf Of Robyn Dempsey Sent: Friday, 2 December 2005 9:37 PM To: ozmidwifery@acegraphics.com.au Subject: [ozmidwifery] CF screening My niece has cystic fibrosis. She has had over 10 hospitalizations in her 3 years of life. Her mum ( my sister) does the physiotherapy for her every day and night. My niece has to take many preparations as she doesn't absorb fats, which means vitamin deficiencies are common. My niece has a permanent pseudo infection in her lungs, this flares up if she gets a cold, which results in a hospital stay. My sister avoids gatherings ( family), if someone is sick. My sister has had so much time off work because she needed to care for my niece, that she gave up work to look after her. My sister has decided not to have any more children, as she feels 2 with CF would be too hard. ( being able to give to both the attention they need). I'm sure she would opt for the testing........don't judge unless you've been in the situation.   Robyn Dempsey