Hell-o to all- first I would like to introduce myself. My name is Denise 52 and live in Fairbanks, Alaska. Gosh where to begin. I was diagnosed with a pituitary macroadenoma December 20, 2000. I had surgery down in Seattle and it was rough because I had to go by myself but I made it through. At that time I was told by the neurosurgen that he believed he removed and the resection of the tumor and what was wrapped around my right optical nerve was clean. I came back to Fairbanks with a routine schedule of MRI and lab , checkups etc every 6 months for tyhe next 6 years. Well I had an MRI on November 22 around 2 weeks ago or so and was now informed that there is a change to my MRI. - I was told it was a slight mass in the same place and it might be regrowning. I have to have another MRI in 3 months to see if there is any change. I feel do down. The first time I dealt with it really good, My sense of humor and outlook were great. I survived it and thought Thank you God . I still say thank you to him but I can't deny that I sad. My daughter is getting married June 27 2004 in Portland and I so want to be there then and to see possible grandchildren. I sort of feel cheated- I was so proud of how I handled it all before but now I think how can I go through22 hours of surgery - 3 weeks in SCICU and another month in the hospital if it comes down to that. I remember the pain, , the unknowning and prayed and got through it. My daughter was there 3 days before the Ist surgery and 2 days after then she had to leave. My husband stayed in Alaska because of work and the animals. It was so lonely and I don't want to experience it again. I know others have had it worse but my whole life, except for my daughter and my 2nd husband it has been abuse, loss, and always the unknown (except when I went ice or rock climbling.) Is there anyone else out there with a similiar case. If so I would love to hear from you so I know I am not alone. Thanks all Denise |
