Meri, ![]() I feel your pain! I have a similar situation, I think. I, too, have seen many doctors for my Pituitary Cyst (1.1 cm) and they all say the same thing as yours, the cyst is not causing my hypopituitary and wacky hormonal symptoms. I keep forgetting to ask them what they would recommend if they had my situation. I can't believe they would accept the diagnosis they have given you and I and remain sick. I see the definition for a Non-Functioning Tumor a little differently than you. The definition that the tumor does not secret anything, the hormone levels test normal, BUT the patient has many hypopituitary problems describes me to a "T". In the above definition, I understand the belief is that the tumor can and does damage the pituitary. Causing it to malfunction while the pituitary tries desperately to perform its job of producing hormones. Thus, before the pituitary eventually starts totally malfunctioning, the patient suffers from many hypopituitary symptoms. My understanding from my many doctors is that this Non-Functioning Tumor is rare (most of my Endos never even heard of it) and since there is not a test to perform to show these hypopituitary symptoms, like there are for hormones, then they cannot and will not conclude a patient (me) has this type of tumor. And since all their normal tests show normal ranges, then I have a good pituitary as far as they are concerned. They totally ignore my symptoms. I'm hoping to find some tests that will confirm my symptoms and then maybe a doctor will agree to recommend removing the tumor. I have yet to find a doctor in my area that recognizes this type of rare pituitary tumor but I have heard thru this and other groups that there are doctors that do. I'm thinking that OSHU might be a good place to ask: Have they ever diagnosed a patient with this type of tumor and then did they remove the tumor? I'm in NJ and it would be very difficult to get to Oregon but when I exhaust my doctors here I will give them a call. Hopefully, one doctor here will fit the bill. So, tell me, does my explanation above for a NonFunc Tumor make sense to you or am I missing something? I have read other definitions for a NonFunc Tumor and everyone seems to be a little different. I wonder who decides which definition is the right one? I have gotten to the point that I just want my dam cyst or tumor removed and see if I do or do not get better. I don't want to have an operation but what other choice do I have. I have been told I suffer from many different ailments, taken the cure for all of these, and gotten no better in 20 years. In the last several years, I have been bedridden. So, I am willing to take a chance on the operation. My life couldn't get any worse. But to find a doctor who will say YES to operate eludes me. Is this also true for you? What kind of symptoms are you dealing with? I have been taking some meds that have really helped my fatigue, foggy mind, peeing in my pants, etc. Looking forward to your ideas on this. It seems we are both in the same boat. Email me directly, if you want: [EMAIL PROTECTED] Pam ![]() | 