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From:
gerg
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To Mr. OMFoire: My recovery time after Dr. Jho's surgery was very fast. He took out 95% of the tumor. There was a part too close to the optic nerve for comfort. He consulted with me about it before the surgery--said that it would be risky getting too close to the optic nerve to go after that 5%--he said he'd do it if I consented, it was up to me. I decided to be conservative. I was 1500 miles from my home in Fla. and I wasn't ready for any big problems. I was only in the hospital overnight. Operation was at 6am and I was out the door by 2pm the next day. I drove across Pennsylvania, 300 miles, three days later to be with my Aunt and Uncle for a 2 weeks of rest. So that was a very fast recovery time. I'd say. The longest recovery time was with the first surgery with the least-skilled surgeon. That surgery was done by two surgeons--one ear and neck guy did initial cuts while the neurosurgeon removed a micro-scopic amount of tumor. I had severe headaches for two weeks afterwards and there is no way I could have driven a car three hundred miles(over lots of consturction through mountains yet) like I did after the Pittsburgh surgery. I think they use a neck and ear surgeon when the neurosurgeon is not skilled enough in skull-base surgery--which is what transphenoidal pituitary is. My experience tells me the skill of the surgeon in PITUITARY surgery is the absolute determining factor in how much pain and recovery time and how much tumor will be removed and how much complication there will be. I must add that the recovery time for the second surgery, which was in Orlando by a fairly skilled PNA -listed surgeon, was only two days with no pain afterwards. What I did notice after the last surgery is feeling very weird. Which may have been the after-effects of the anesthesia. I just felt weird and anti-social. Thanksgiving was a week after that last surgery and I just left the table and took a three-hour walk--I didn't want to be around people. Also, I could not sleep more than four hours a night for months. I had so much energy but I couldn't do anything athletic for the six weeks post-surgery time when you are not supposed to lift more than a few pounds. I have never gone back to nomal sleeping hours. Nobody can seem to explain it. My theory is that the surgery tweeks the hypothalamus--the sleep center behind the pituitary--in to being over active. Maybe is stops it from secreting enough Melotonin. My theory anyway. Hope this info helps. greg |
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