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igf-1 levels & acromegaly diagnosis
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From:
Jean
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Hi Sorrel. I always hate to post about acromegaly because I am not textbook. Fasting absolutely screws up IGF-1. My IGF-1 has always been normal and now is it 3 points away from being growth hormone deficeint. I however have high growth hormone. In my case they can't find the tumor. So my situation is definitely different. You need to eat well for at least 2 weeks before the IGF-1 test, that means 3 decent meals a day. I had the Oral Glucose Tolerance Test with the GH component done. The first test was done very sloppy and using an old technique. It showed that I didn't suppress to less than one. It was dismissed by an endo that doesn't deal with endocrine disease. The next one I had done used explicit instructions faxed from Esoterix in the LA area. This one definitely confirmed the acromegaly. I also needed more of the glucose. Usually they give you 75 grams of glucola to challenge you. My glucose dropped even lower after taking it. So when I have the OGTT done they give me 100 grams and my glucose barely budges but at least doesn't go down. I agree with Maria on the weight. I ate whatever I wanted, whenever I wanted and never gained a pound. As of January that changed. I put on 25lbs. quickly and it isn't budging. You weight can change due to other hormonal problems. I had my thryroid checked last week to see if it is on the blink. I know a lot about acromegaly and I do post occassionly on the cushings board. Wish my case was straight forward. You absolutely need to deal with a real pituitary endocrinologist and not someone who lists they are interested in it. I spent from 1999 to 2004 screwing around with specialist that had absolutely no clue. In retrospect the money I spent in copays and deductables was 10 times what I spent going to see Dr. Friedman in LA. He is nailing stuff down right and left. There are several doctors that are true pituitary endocrinologists and you need to do some work and get yourself to one of them. You need to take your insurance, time available, location and what local medical support you have ( endo or internist or family practice doctor willing to work with the pit specialist) into consideration. Good luck, keep trying, don't give up, and let me know if you have any more questions. Please post to Jean and I will see it. Jean in Co. |
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