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igf-1 levels & acromegaly diagnosis
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From:
![]() ![]() KC-GoneNuttymomof1
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A little history is that I am now 28 years old, and I am going to be completely honest and upfront about everything, so sorry if this gets to be to much information. The main reason I went to the doctors was because I was sweating so badly. I would be sitting at my desk at work and have sweat rings under my arms. I would always have two fans running in my office and still I was sweating. It was driving me batty! That was the worst thing for me. Then there was the hair growth. Oh My God was there the hair growth. I told my husband that I felt like I was turning into a man. I have to shave my legs everyday, and by the end of the day it feels like I didn't shave. Then I got pregnant and things started to escalate. I couldn't wear my wedding rings anymore, my shoe size went up by a size and a half, I got skin tags, and my nose started to spread. This is the confusing part, all of these symptons can come along with any normal pregnancy. That is why none of the doctors thought twice about my situation. My normal family doctor told me that once I had my baby and finished breast feeding then I should go to an endo for hormone testing but my family doctor was even shocked at the outcome.
I finished breast feeding my son Mathew in January, but I never stopped producing breast milk. The first endo I went to was wonderful and diagnosed me quickly. She also told me that I was lucky to have had my son and that it would be extremely difficult for me to have another child. To continue on with my story, the endo sent me to a neurosurgeon and I went into surgery on March 25th to have my macroadenoma removed. I had several complications during and after my surgery. Then I found out that not even a fourth of my tumor had been removed! I was pissed! And after doing the research I should have done before my surgery, I found out that my neurosurgeon and endo were not specialist in acromegaly.
So now I have done the proper research and I have a team of doctors including a new endo, a new neurosurgeon, and an ENT that will all be taking care of my next surgery as a team. My next surgery is scheduled for June 23rd. I'm sorry that I am rambling, but I really want you to make sure you understand what can happen if you are in the wrong hands. By the way my new endo clarified the pregnancy issue for me. She told me that I should never say that I was unable to get pregnant. The thing is that they have ways to make sure that you ovulate and have normal periods. Where there is a will there is a way. You might not be able to do it on your own, but you can do it. So don't ever let a doctor tell you that you can't have children!
I was given some good advise a few weeks ago from a very nice gentleman. He told me, "this is your life. Do the research, talk to as many doctors as you want, don't let any doctor make you feel unimportant. Don't ever stop searching for the answers because one day you will find the right doctor who will be able to point you in the right directions. And keep on smiling because life is a gift." I cried for about an hour while I was talking to this complete stranger about my situation. He made me realize how wonderful life is. And I will never stop fighting. Fighting for my way of life. Fighting for my health. Fighting for my family.
So I want you to keep on fighting! Fighting for answers and fighting for your way of life! And never lose hope!
If you want to talk in private, email me at [EMAIL PROTECTED]
KC |
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