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Options After Surgery for Non-functioning Pituitary

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From: alcark

Good luck to you guys!  Sounds like you are doing the research, so you are on the right track!  
 
Amy
-----Original Message-----
From: ktzmoore [mailto:[EMAIL PROTECTED]
Sent: Friday, June 10, 2005 11:45 AM
To: Pituitary Chat
Subject: Re: Options After Surgery for Non-functioning Pituitary

New Message on Pituitary Chat

Options After Surgery for Non-functioning Pituitary

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From: ktzmoore

Thanks for the info.  His tumor before surgery was over 4 cm.   He is not expected to have his pituitary start to re-function.  It was damaged during the surgery.  He has had hit hormones checked at least 3 times now; twice prior to surgery and once after.  They will redo the test this coming Tuesday when we see the Endo Dr. again.  He is currently taking 5 mg of Prednisone daily, 200 mg injections of Testosterone bi-weekly and 0.1 mg of Levothroid daily.  His thyroid and cortisol were moderately low (not sure of exact numbers) and his testosterone was almost non-existent at 10.  Everything else so far seems to be doing ok.  He did have diabetes insipidus right after surgery, but it is no longer a problem.  As for systems that he had before he was diagnosed, they were only loss of vision (which he is regaining), fatigue, and a slightly less sex drive (his pre-surgery Testosterone was at 420).<o:p></o:p>

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I have been doing some research on radiation therapy and gamma knife.  They all sound scary.  Radiation sounds like is takes many weeks and as we live 2 hours away from the facility this would mean many more weeks out of work with no income coming in.  As for the Gamma Knife, I don't know how he will make it through.  He is very claustrophobic and can barely make it through the MRI's with Valium and me holding his hand while he is in.  Being all by himself during the Gamma Knife procedure might be more that he can take.<o:p></o:p>

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Again thanks for this information.  This has been a very scary 4 months for my husband and me.


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