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Questions and confusion...

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From: MinnieChat

Hi John!
 
I haven't worked on a reference page (yet) with a bunch of links yet for you to do some research on this issue, but there might be some information in the papers here:
 
Just scroll down to the P's.
You can also check out the S's... for surgery :).
 
Typically radiation is used as a secondary treatment for pituitary tumors, not primary treatment. If you are experiencing loss of pituitary hormones from the enlarging tumor, surgery may help, but it may not, as the growth of the tumor has been pressing on the pituitary and it is possible that permanent damage may be the end result.Removing the tumor may not improve your hormonal status.
 
In the hands of a experienced surgeon though, surgery to remove the tumor should go well - the goal would be to minimize damage to the normal pituitary and resect the tumor in its entirity. The thing about doing the surgery while the tumor is 1.1cm is that the surgeon should be able to resect the entire tumor - unless it has extended into areas that are not easily accessible.
 
Radiation is typically used to control tumor regrowth as a second line of treatment - after surgery. Lets say some time passes from your first surgeyr, and your tumor seems to be regrowing. Then, the recommendation may be to radiate the area to stop the growth. Some patients don't want to deal with radiation, and opt for repeat surgeries.
 
Depending on the modality of radiation used, there could be loss of pituitary hormonal function.  What we encourage folks to do is to research the radiation modality being suggested, and make sure opinions are being gathered from centers that do alot of pitutiary radiation protocols.
 
Same deal with surgery - go see someone who does alot of pituitary surgeries for consult. You might want to talk to a few surgeons to get their opinions. I know it is a pita to set up the appointments and do the consult, but it is good to hear the opinions (even if they contrast each other) from the surgeons you select to interview.
 
You know... you may even run into opinion that since the tumor is stable, and it is not causing hypersecreting of hormones, the least invasive approach is simply watch and wait.
 
We have some members here who have stable tumors that are right about your same tumor size.
 
I don't know if this helps, but I know if I were you, I'd talk to a few pituitary surgeons and also look into the radiation modalities that may be applicable to you. You have time to research the issues and make good decisions for you!
 
Hope this helps!
 
Minnie
 
 

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