----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: Chris_Wenninger Message 4 in Discussion Boy o Boy Mommyof8 I assume from the description of your symptoms that you have a growth hormone tumor. While you only see the outward symptoms and consider them tolerable you need to understand what the tumor is doing to your organs. The excess growth hormone will impact your organs and can cause heart failure. My son is 20 and has been diagnosed with Acromegaly since 17. He has had one surgery and came out of it saying I could do this every 5 years if I had too. He was eating Taco Bell in the neuro-ICU the morning after his surgery. The doctors did not get the whole tumor, and now he is treated with 30 mg Sandostatin LAR each month. It is inconvenient as he needs to have a nurse inject the shot, but it keeps the growth hormone under control. But, I cant imagine his life without the shot. Please consider the impact on your organs, and talk your choices over with your doctor. I wish you luck Chris Ogys Mom<o:p></o:p> <o:p> </o:p> From: mommyof8 [mailto:[EMAIL PROTECTED] Sent: Tuesday, February 19, 2008 9:09 PM To: Pituitary Chat Subject: Re: Just wondering<o:p></o:p> <o:p> </o:p> <o:p></o:p> <o:p></o:p> New Message on Pituitary Chat<o:p></o:p> <o:p></o:p> <o:p> </o:p> Just wondering<o:p></o:p> Reply <o:p></o:p> <o:p></o:p> Reply to Sender Recommend <o:p></o:p> Message 2 in Discussion <o:p></o:p> <o:p></o:p> From: mommyof8 <o:p></o:p> <o:p> </o:p> Hi,<o:p></o:p> I was diagnosed in October of 2006 and have yet to make up my mind about what I want to do. I had pretty mild symptoms that my doc fortunately picked right up on (swelling, puffy hands and facial features and excessive sweating). Other than that, I've been really fortunate. That is why I hesitate so much to do any medication and/or surgery. I am so afraid that I'll feel worse with the meds or surgery and I love my life right now. The only thing that really bothers me is KNOWING that I have this darn thing in my body. I would definitely be interested to know if people felt better before or after their treatments.<o:p></o:p> <o:p></o:p> View other groups in this category. <o:p></o:p> ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
