I agree with you I enjoy life too.....But it is so unfair to caregivers like my wife, she loves me but we do not qualify for any outside caregivers or nurse help.....she has to work full time plus change my catheters-dress and help shower me-- do bowel routines-- leg range of motion and so on......she always say's she wishes she would die and be free of the endless work and life has no joy... I feel so guilty but I have no option but perhaps a nursing home, So while we live in this condition is it fair to our loved ones ???  Also a few other list members have told me some of their loved ones feel mizerable with this lifestyle too.
                                                                                                                 Dan

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