I also have severe burning pain in my abdominal area, which has also spread
to my back over the years. I also have burning pain in my butt and legs,
but the burning in my gut is a cold burning and the other burning is hot
burning. The first place I got nerve pain, the ice cold burning, started in
my bellybutton area, only several months after my injury (C4-5, incomplete).
Over the years it's only got worse and worse. I also had the whole work up
from the GI doctor and everything always comes back normal. He says it's a
combination of spastic colon & esophagus and nerve pain. None of the GI
medications relieve the pain at all. My GI doctor thought part of the
problem was medication and felt I needed a better way for the medication to
be distributed then through my digestive tract.
So I recently went ahead and had a baclofen pump put in and am hoping by
getting off the oral baclofen and being able to take a lot less of a dosage,
which works much better right through the spinal cord, will help relieve
some of my burning pain all over. I'm still on a low dosage and working my
way up and haven't been able to go off the oral medicine yet, so can't say
if it's going to help yet. I'm praying I will get some pain relief because
living with this severe burning pain has been HELL.
I also asked about the DREZ procedure and my doctor told me there was no
guarantee it would stop the pain.
The pain is by far worse than the paralysis!
Corie
C4-5, incomplete, 12 years post,
Redding, CA
----- Original Message -----
From: "Fragile" <[EMAIL PROTECTED]>
To: <[email protected]>
Sent: Friday, July 22, 2005 5:53 AM
Subject: Re: [QUAD-L] DREZ procedure
I'm a C-5 incomplete, 11 years. The pain is a burning pain in my
colon, started about a year ago. Started out pretty mild, but has
been getting progressively worse ever since. Had a colonoscopy done
last January, all they found was "mild" proctitis and a grade 1
internal hemorrhoid. Gastroenterologist prescribed annusol
suppositories, no relief. General doctor prescribed proctofoam, no
relief. Back to the gastroenterologist, prescribed annusol cream, no
relief. General doctor told me to keep trying the proctofoam, also
had me take a stool sample to be tested for parasites/bacteria. I
never heard back from the General doctor about the tests, so I called
them a few weeks ago. The receptionist said there was a letter about
the results in my file, but only the doctor could open it and he's out
of town for a month. I made an appointment to see another doctor in
the same office, was supposed to go on July 20, but turns out she has
a meeting that day, was rescheduled to July 27. Hopefully I'll have
more luck with a third opinion, thought I would ask her about the DREZ
procedure.
On 7/21/05, Silas Shelburne <[EMAIL PROTECTED]> wrote:
Just wondering,
Whats your condition, where is the pain? I have bad pain in my arms
and
legs, my arms and shoulders either feel like their laying in ice or
laying
in fire when its hot. I don't understand how I can feel hot and cold,
but
could cut them off and I wouldn't feel nothing.
Silas
----- Original Message -----
From: "Fragile" <[EMAIL PROTECTED]>
To: <[email protected]>
Sent: Thursday, July 21, 2005 1:04 PM
Subject: Re: [QUAD-L] DREZ procedure
> I've read a bunch of articles about how it's supposed to work, was
> just hoping somebody here had tried it. I seem to remember somebody
> on this list mentioning something similar they had done with positive
> results, but that was six or seven years ago. I'm in such terrible
> pain now I'll try anything. I've been bedridden for about two months
> now, it can't get any worse.
>
> On 7/21/05, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
>>
>>
>> I've heard of it. It's to help eliminate pain for spinal injuries
and
other
>> problems that result from irregular spinal fluid flow. It is where
they
make
>> lesions on your spinal cord and this corrects the condition in some
>> miraculous way that they can't explain. I wouldn't do it, but I'm
not
you. I
>> think I'd want to talk to someone who had been through it recently.
>> Acupuncture of the spinal cord with an electrically heated
probe.hmmm?
Good
>> Luck.
>>
>> john
>>
>> In a message dated 7/21/2005 9:33:00 A.M. Eastern Daylight Time,
>> [EMAIL PROTECTED] writes:
>> has anyone here had the DREZ procedure done for pain relief?
>>
>>
>
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