Hey Dan, 

In this email you speak of pain, I too have just recently started having
really bad pain.  My Dr.  Has checked just about everything and not found
anything wrong.  What is causing your pain and what do you do to try and
control it?  

Thanks Silas 

 

From: Danny Hearn [mailto:[EMAIL PROTECTED] 
Sent: Monday, August 06, 2007 8:20 AM
To: [EMAIL PROTECTED]; [email protected]
Subject: Re: [QUAD-L] Exactly 10 years today

 

Naomi.....You said you and Cullen had Transverse Myelitis---Also Jim The
Owner of this Site---He also has www.Makoa.org. that deals with other issues
plus Transverse Myelitis links. Also there is another Gal on here That was
finishing a degree in college that also has Transverse Myelitis, I'm sorry
but her name slipped my mind right now due to pain and meds, I'm sure others
on here can help with her name.One more site called the QUAD LINK had a few
listed....one is a nice young girl from Israel who is very interesting..she
has a web site that shows her mouth drawn art and much more there.
Dan

[EMAIL PROTECTED] wrote: 

Dan,

 

I'm so sorry to hear about your syrinx.  Yes, he's great to still be alive.
My Transverse Myelitis hit me instantly.  I had to life symptoms(fever,
chills, diarrhea, etc.) for about four days, then while sitting at my
nephew's wedding reception.  I had a terrible pain in my neck and arm and
within seconds I couldn't feel my hands and arms and within 10 minutes
later, my legs gave out.  By the time I reached the hospital, I was totally
paralyzed from the neck down.  After five sessions of plasmapheresis, I
regained some use of my left leg, and a little use of my left arm and hand.
I am totally paralyzed on the right side.

 

Who are the other people on the quad list that has Transverse Myelitis?  I
only know of the one, Cullen.  Hang in there until later. 

 

Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis





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