How did your symptoms start? I have had abnormal pain in my neck for the last 
four days. At times my neck has a grinding like sound when I move my head. I 
don't know if I have something pulled, or some arthritis starting, weather/low 
pressure- I don't know.... but damn it hurts.
 
Tim c5-c6, 19 years post today
 
www.geocities.com/onemofortom <----- my story
http://www.geocities.com/onemofortom/handicappstuff <----- handicrapper stuff 
for sale
www.whoopiekatjewelry.com <----- my business
http://blog.whoopiekatjewelry.com <-----drop by and blog a while (about 
anything)



----- Original Message ----
From: Danny Hearn <[EMAIL PROTECTED]>
To: Silas Shelburne <[EMAIL PROTECTED]>; [email protected]
Sent: Monday, August 6, 2007 5:00:16 PM
Subject: RE: [QUAD-L] Exactly 10 years today

Hi, Silas...Mine is caused by syringomyelia or in simple words a Syrinx--that 
is a build up of spinal fluid that can spread at different speeds -- it can 
stay the same-spread very slowly or quicker in some cases.If it goes to your 
brain you die, but they hate to operate on it unless a person is losing 
function because the surgury is very dangerous and can leave a person worse off 
than they were in some cases. I also have diabetes and both of these things 
cause more and more nerve damage as time goes on. Right now I just take vicodan 
when I need it and take elavil to help me sleep. Some days or better than 
others---I guess that is true for us all.      Hang in there and best wishes!   
       Dan

Silas Shelburne <[EMAIL PROTECTED]> wrote: 
Hey Dan, 
In this email you speak of pain, I too have just recently started having really 
bad pain.  My Dr.  Has checked just about everything and not found anything 
wrong.  What is causing your pain and what do you do to try and control it?  
Thanks Silas 
 
From: Danny Hearn [mailto:[EMAIL PROTECTED] 
Sent: Monday, August 06, 2007 8:20 AM
To: [EMAIL PROTECTED]; [email protected]
Subject: Re: [QUAD-L] Exactly 10 years today
 
Naomi.....You said you and Cullen had Transverse Myelitis---Also Jim The Owner 
of this Site---He also has www.Makoa.org. that deals with other issues plus 
Transverse Myelitis links. Also there is another Gal on here That was finishing 
a degree in college that also has Transverse Myelitis, I'm sorry but her name 
slipped my mind right now due to pain and meds, I'm sure others on here can 
help with her name.One more site called the QUAD LINK had a few listed....one 
is a nice young girl from Israel who is very interesting..she has a web site 
that shows her mouth drawn art and much more there.             Dan

[EMAIL PROTECTED] wrote: 
Dan,
 
I'm so sorry to hear about your syrinx.  Yes, he's great to still be alive.  My 
Transverse Myelitis hit me instantly.  I had to life symptoms(fever, chills, 
diarrhea, etc.) for about four days, then while sitting at my nephew's wedding 
reception.  I had a terrible pain in my neck and arm and within seconds I 
couldn't feel my hands and arms and within 10 minutes later, my legs gave out.  
By the time I reached the hospital, I was totally paralyzed from the neck down. 
 After five sessions of plasmapheresis, I regained some use of my left leg, and 
a little use of my left arm and hand.  I am totally paralyzed on the right side.
 
Who are the other people on the quad list that has Transverse Myelitis?  I only 
know of the one, Cullen.  Hang in there until later. 
 
Naomi
C-4 quad, incomplete since July 2, 2005
Transverse Myelitis






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