Hey Dan, How did they find the syrinx-, I'm having a mri Friday will it show the syrinx-? Where is your worst pain, mine is in my legs I take some high power meds- but they don't help. I take a phenergan at night it helps to enhance the pain meds- and helps me sleep. Any suggestions from any of you good people on the quad list would be greatly appreciated. Thanks Silas
From: Danny Hearn [mailto:[EMAIL PROTECTED] Sent: Monday, August 06, 2007 4:00 PM To: Silas Shelburne; [email protected] Subject: RE: [QUAD-L] Exactly 10 years today Hi, Silas...Mine is caused by syringomyelia or in simple words a Syrinx--that is a build up of spinal fluid that can spread at different speeds -- it can stay the same-spread very slowly or quicker in some cases.If it goes to your brain you die, but they hate to operate on it unless a person is losing function because the surgury is very dangerous and can leave a person worse off than they were in some cases. I also have diabetes and both of these things cause more and more nerve damage as time goes on. Right now I just take vicodan when I need it and take elavil to help me sleep. Some days or better than others---I guess that is true for us all. Hang in there and best wishes! Dan Silas Shelburne <[EMAIL PROTECTED]> wrote: Hey Dan, In this email you speak of pain, I too have just recently started having really bad pain. My Dr. Has checked just about everything and not found anything wrong. What is causing your pain and what do you do to try and control it? Thanks Silas From: Danny Hearn [mailto:[EMAIL PROTECTED] Sent: Monday, August 06, 2007 8:20 AM To: [EMAIL PROTECTED]; [email protected] Subject: Re: [QUAD-L] Exactly 10 years today Naomi.....You said you and Cullen had Transverse Myelitis---Also Jim The Owner of this Site---He also has www.Makoa.org <http://www.makoa.org/> . that deals with other issues plus Transverse Myelitis links. Also there is another Gal on here That was finishing a degree in college that also has Transverse Myelitis, I'm sorry but her name slipped my mind right now due to pain and meds, I'm sure others on here can help with her name.One more site called the QUAD LINK had a few listed....one is a nice young girl from Israel who is very interesting..she has a web site that shows her mouth drawn art and much more there. Dan [EMAIL PROTECTED] wrote: Dan, I'm so sorry to hear about your syrinx. Yes, he's great to still be alive. My Transverse Myelitis hit me instantly. I had to life symptoms(fever, chills, diarrhea, etc.) for about four days, then while sitting at my nephew's wedding reception. I had a terrible pain in my neck and arm and within seconds I couldn't feel my hands and arms and within 10 minutes later, my legs gave out. By the time I reached the hospital, I was totally paralyzed from the neck down. After five sessions of plasmapheresis, I regained some use of my left leg, and a little use of my left arm and hand. I am totally paralyzed on the right side. Who are the other people on the quad list that has Transverse Myelitis? I only know of the one, Cullen. Hang in there until later. Naomi C-4 quad, incomplete since July 2, 2005 Transverse Myelitis _____ Get a sneak peek of the all-new AOL.com <http://discover.aol.com/memed/aolcom30tour/?ncid=AOLAOF00020000000982> .
