I have been suffering numerous UTI for the last year and had a number of
testing. I was just told a week and a half ago that my ileoconduit was no
longer working and I needed a new one. I didn't realize that urologist I
had been seeing realized what I was facing. He had given me 4 lithotripsy
to break kidney stones. The urologist gave me three doctors. I had to look
up the numbers and call each office. None of the three doctors could do
that kind of surgery. One of the office managers gave me the name of
somebody that he thought might do this type of surgery. I had been in the
hospital for two weeks with sepsis and another urinary tract. The doctor
said that he had performed over 100 of the surgeries. Two out of three
people had complications and he had lost some of his patients,
I don't have any other option. Has anyone ever heard problems on your
ileoconduit no longer function. Dr. Wyre said that in normal ileoconduit
will last at the most 40 years. I hope I will hear from someone. I may be
looking at the wrong words but I'm not really finding documentation about
the surgery. He will have to cut another 6 inches off my small intestine to
make a stoma. I don't know the ureters are working properly. I didn't ask
that question. I had just completed 14 days using a central line after I
got out of the hospital and I'd already developed another infection. So
please provide any information.
I don't think I have any option, but I'm trying to prepare myself. My
disability C4-5 quadriplegic complete, 42 years post. Ileoconduit was
performed after bladder cancer 86. I just had 10 inches taken out of my
large intestine: in November 2015. Seven lymph were remitted that were
cancerous. Three were not. I took chemotherapy for a couple months but it
just cause bleeding. So it was no longer a candidate. They are going to
peat scan after my surgery,the surgery is going to be 10 hours long at KU
hospital on 9/7/16.
There is also something on my ovaries and a couple modules on my lungs. I
wanted to share this with all of my Quad friends, if anyone can offer any
information to my medical situation, please respond. It will be hard for me
to check my messages or the on my computer to read about other persons with
spinal cord injury with the same problem. Thank you for any input you can
provide.
