Wow. Helluva situation, Dana. My love and prayers go you way. God bless you and stay strong! Larry Willis, an old crippled turd with good intentions.
Sent from my iPad Begin forwarded message: Resent-From: <[email protected]<mailto:[email protected]>> From: Danny Hearn <[email protected]<mailto:[email protected]>> Date: September 4, 2016 at 4:54:17 PM EDT To: Dana Wray <[email protected]<mailto:[email protected]>>, "<[email protected]<mailto:[email protected]>>" <[email protected]<mailto:[email protected]>> Subject: Re: [QUAD-L] Redoing my ileoconduit on Wednesday Reply-To: Danny Hearn <[email protected]<mailto:[email protected]>> Wow, Dana you are facing quite a bit right now, we will be praying for the right Doctor to perform exactly what is needed and for you to have the strength to pull through it all, You are a Sweet Woman, may the grace and love of God be with you. Dan H** On Sunday, September 4, 2016 5:30 AM, Dana Wray <[email protected]<mailto:[email protected]>> wrote: I have been suffering numerous UTI for the last year and had a number of testing. I was just told a week and a half ago that my ileoconduit was no longer working and I needed a new one. I didn't realize that urologist I had been seeing realized what I was facing. He had given me 4 lithotripsy to break kidney stones. The urologist gave me three doctors. I had to look up the numbers and call each office. None of the three doctors could do that kind of surgery. One of the office managers gave me the name of somebody that he thought might do this type of surgery. I had been in the hospital for two weeks with sepsis and another urinary tract. The doctor said that he had performed over 100 of the surgeries. Two out of three people had complications and he had lost some of his patients, I don't have any other option. Has anyone ever heard problems on your ileoconduit no longer function. Dr. Wyre said that in normal ileoconduit will last at the most 40 years. I hope I will hear from someone. I may be looking at the wrong words but I'm not really finding documentation about the surgery. He will have to cut another 6 inches off my small intestine to make a stoma. I don't know the ureters are working properly. I didn't ask that question. I had just completed 14 days using a central line after I got out of the hospital and I'd already developed another infection. So please provide any information. I don't think I have any option, but I'm trying to prepare myself. My disability C4-5 quadriplegic complete, 42 years post. Ileoconduit was performed after bladder cancer 86. I just had 10 inches taken out of my large intestine: in November 2015. Seven lymph were remitted that were cancerous. Three were not. I took chemotherapy for a couple months but it just cause bleeding. So it was no longer a candidate. They are going to peat scan after my surgery,the surgery is going to be 10 hours long at KU hospital on 9/7/16. There is also something on my ovaries and a couple modules on my lungs. I wanted to share this with all of my Quad friends, if anyone can offer any information to my medical situation, please respond. It will be hard for me to check my messages or the on my computer to read about other persons with spinal cord injury with the same problem. Thank you for any input you can provide.
