Like everyone else I'm praying that you have a really good outcome and for the best. When you say you haven't ilio conduit, do you mean you have a stoma or is yours go through your bellybutton?
I honestly just know enough to be dangerous :-) I have what I referred to as a urostomy, but basically I have a stoma which is attached to my bladder via 9 inches of intestines. While mine is still working and is much better than it used to be, I still suffer quite a bit of pain, but my bouts with A.D. have diminished significantly. Sorry I really can't be a big help, but I do hope you get everything you need to get done. Keep us informed. Q On Sunday, September 4, 2016, Dana Wray <[email protected]> wrote: > I have been suffering numerous UTI for the last year and had a number of > testing. I was just told a week and a half ago that my ileoconduit was no > longer working and I needed a new one. I didn't realize that urologist I > had been seeing realized what I was facing. He had given me 4 lithotripsy > to break kidney stones. The urologist gave me three doctors. I had to look > up the numbers and call each office. None of the three doctors could do > that kind of surgery. One of the office managers gave me the name of > somebody that he thought might do this type of surgery. I had been in the > hospital for two weeks with sepsis and another urinary tract. The doctor > said that he had performed over 100 of the surgeries. Two out of three > people had complications and he had lost some of his patients, > I don't have any other option. Has anyone ever heard problems on your > ileoconduit no longer function. Dr. Wyre said that in normal ileoconduit > will last at the most 40 years. I hope I will hear from someone. I may be > looking at the wrong words but I'm not really finding documentation about > the surgery. He will have to cut another 6 inches off my small intestine to > make a stoma. I don't know the ureters are working properly. I didn't ask > that question. I had just completed 14 days using a central line after I > got out of the hospital and I'd already developed another infection. So > please provide any information. > I don't think I have any option, but I'm trying to prepare myself. My > disability C4-5 quadriplegic complete, 42 years post. Ileoconduit was > performed after bladder cancer 86. I just had 10 inches taken out of my > large intestine: in November 2015. Seven lymph were remitted that were > cancerous. Three were not. I took chemotherapy for a couple months but it > just cause bleeding. So it was no longer a candidate. They are going to > peat scan after my surgery,the surgery is going to be 10 hours long at KU > hospital on 9/7/16. > There is also something on my ovaries and a couple modules on my lungs. I > wanted to share this with all of my Quad friends, if anyone can offer any > information to my medical situation, please respond. It will be hard for me > to check my messages or the on my computer to read about other persons with > spinal cord injury with the same problem. Thank you for any input you can > provide. > > >
