____________________________________
From: [email protected]
I have heard of this procedure. Aging with SCI can cause physical
complications earlier than the general population and they are at a higher
risk for
bladder cancer.
In my non-professional opinion, I would think that along with a surgeon
and oncologist she needs a Doctor of PM&R on her medical team.
You can lelrn more about bladder cancer and SCI here:
https://search.nih.gov/search?utf8=%E2%9C%93&affiliate=nih&query=spinal+cord
+injury+bladder+cancer&commit=Search
Mercedes
Mercedes Rauen
Executive Director
Spinal Cord Injury Association of Illinois
P. O. Box 545
Palos Heights, IL 60463
708-671-1808 www.sci-illinois.org
SCIA - Chapter of United Spinal Association
Member of Community Health Charities of Illinois
Seminar - A Day in Life with SCI, 10/1/16
-----Original Message-----
From: wheelchair <[email protected]>
To: SCIInjury <[email protected]>
Sent: Tue, Sep 6, 2016 7:17 am
Subject: Fwd: [QUAD-L] Redoing my ileoconduit on Wednesday
Have you heard of this procedure before ?
W
____________________________________
From: [email protected]_ (mailto:[email protected])
To: [email protected]_ (mailto:[email protected])
Sent: 9/4/2016 5:30:27 A.M. Central Daylight Time
Subj: [QUAD-L] Redoing my ileoconduit on Wednesday
I have been suffering numerous UTI for the last year and had a number of
testing. I was just told a week and a half ago that my ileoconduit was no
longer working and I needed a new one. I didn't realize that urologist I had
been seeing realized what I was facing. He had given me 4 lithotripsy to
break kidney stones. The urologist gave me three doctors. I had to look up
the numbers and call each office. None of the three doctors could do that
kind of surgery. One of the office managers gave me the name of somebody that
he thought might do this type of surgery. I had been in the hospital for
two weeks with sepsis and another urinary tract. The doctor said that he had
performed over 100 of the surgeries. Two out of three people had
complications and he had lost some of his patients,
I don't have any other option. Has anyone ever heard problems on your
ileoconduit no longer function. Dr. Wyre said that in normal ileoconduit will
last at the most 40 years. I hope I will hear from someone. I may be
looking at the wrong words but I'm not really finding documentation about the
surgery. He will have to cut another 6 inches off my small intestine to make a
stoma. I don't know the ureters are working properly. I didn't ask that
question. I had just completed 14 days using a central line after I got out
of the hospital and I'd already developed another infection. So please
provide any information.
I don't think I have any option, but I'm trying to prepare myself. My
disability C4-5 quadriplegic complete, 42 years post. Ileoconduit was
performed after bladder cancer 86. I just had 10 inches taken out of my large
intestine: in November 2015. Seven lymph were remitted that were cancerous.
Three were not. I took chemotherapy for a couple months but it just cause
bleeding. So it was no longer a candidate. They are going to peat scan after
my surgery,the surgery is going to be 10 hours long at KU hospital on
9/7/16.
There is also something on my ovaries and a couple modules on my lungs. I
wanted to share this with all of my Quad friends, if anyone can offer any
information to my medical situation, please respond. It will be hard for me
to check my messages or the on my computer to read about other persons with
spinal cord injury with the same problem. Thank you for any input you can
provide.
